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Old 09-04-2008, 05:05 PM #1
dahlek dahlek is offline
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dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default When do you see that neuro again?

If it's not soon, it's worth your while to put in a call and explain how things are 'progressing' and share your concerns.
Small or large fibre neuropathies spread very differently in each of us. In some instances it can go fast [my case, once it really started], in most instances tho, it goes slowly.
Don't give up calling your doc's office until you get some sort of satisfactory answer...if things are changing rapidly and noticably in different 'feeling' ways, do get that point across and see if they can 'fit you in' for an appt. DO be very specific about which meds you are and aren't taking and the quantities .... with what is and is not working to boot.
As for the 'sitting' issue? I don't work, but I've found that getting up and just doing a short walk around the house helps immensely [tho not for long]. So plan your 'errands' accordingly?
Just don't panic yet. NOW it is not constructive to do so. See the doc and get more tests..... They are likely called for because either something is changing or something new is happening. Be patient but persistent and HOPEFUL! I'm crossing my fingers that you do see your doc soon! - j
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Old 09-05-2008, 10:11 AM #2
jsrail jsrail is offline
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Location: Scottsdale, AZ
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jsrail jsrail is offline
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Default

Thanks dahlek, I did manage to get in to see my neuromuscular doc yesterday afternoon and explained the progression to him. He has ordered a series of blood test and I'm to see him again in 3 months. He changed my meds from 3600mg of Neurontin and 100mg of Tramadol to 2700mg of Lyrica and 40mg of OxyContin per day. Now I am just waiting for my insurance company to approve the prescriptions. Seems everytime I get a prescription, the insurance company needs "prior authorization!" But, I have too many pre-existing conditions and can't change my insurance company.

The problem sitting is that when I sit, I burn; and when I stand or walk, my feet burn! Kind of damned if I do and damned if I don't! lol I sleep on my side already cause of my gastroparesis, so thats better at night.

We'll see how the bloodwork comes out.
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