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09-16-2008, 08:48 PM | #1 | ||
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Junior Member
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Hello all
I, too, am kind of new to all of this. Saw a regular neurologist for some of the usual tests, EMG, NCV, GTT (4hr.), heavy metals, Anti HU, B12,etc. Nothing really definite. Feel like I am in a wind storm with burning sand hitting me. No real numbness. Does not feel like the numbness with hitting my funny bone. Affects feet, legs, hands and arms. Now I feel some burning in my fingernails for the last few months. I stopped using any type of nail polish, etc. and still burning. Nails look normal. Finally have an appoint to see a PN neurologist in October and maybe I can find out what is going on. Neurontin doesnt seem to help. Any thoughts? Thanks. |
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09-21-2008, 09:17 AM | #2 | ||
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Junior Member
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Hi sbvcm,
I have a very hot burning sensation at the very tip of some of my fingers. I goes up under the nail a little. Not sure if that is the same as you are describing? I also get a bad burning sensation on the cuticle area of my big toe. Hope things go well with the PN specialist in October. My appt is in November with a PN specialist. Let us know how your appointment goes. Kelly
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Charcot-Marie-Tooth Disease Type 1A Fibromyalgia |
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09-21-2008, 08:34 PM | #3 | ||
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Junior Member
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Hi Kelly Sounds like there might be similarities. Everything is so different and yet similar for many of us. I will let you all know about my PN appt. in October. Please let us know how your appt. goes too. We have to stick together. |
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