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Old 11-14-2008, 10:00 PM #21
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Please get tested before using Vit. D. It is a fat soluble vitamin which means it is stored in your fat. Its dangerous to take to much of it. get tested and then after 6 weeks of taking D get tested again. You should be working with a doctor if you need to take Vit. D.
I take 1000mg. twice a day but my levels are quite low. I tried the prescription 50000 mg but it gave me headaches. It is believed that low D may cause muscle aches and pain and possibly is responsible for some cases of fibromylagia.
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Old 11-14-2008, 11:12 PM #22
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Quote:
Originally Posted by rina View Post
I open the link. Thanks.

I have a vit D deficiency that was checked only last week.

Did you check your Vit D? what were the results?
What about anemia? iron deficiency?

HI Rina,

I had both Vit D deficiency and Iron Deficient Anemia. Took me half a year plus to correct both and still take both D and iron under a docs care.
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Old 11-15-2008, 07:15 AM #23
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Definitely have vitamin d use monitored by a doctor - I have low vitamin d (it is now very common in many sectors of the population, not just those of us with PN). I now take one vit d tablet a month to maintain my vitamin d levels in the normal range (I originally had to take them more frequently to increase my level, then I went on to one a month for ever more). I just take it on the first of each month, and I have my vit d levels monitored from time to time.

For me it is vital for my bones as I am on long term steroids so bone protection is essential (also on a biphosphonate and cyclic calcium). Haven't noticed any difference with my PN since my vitamin d level came back up but it's sure good to know that my bones can maximise their use of the calcium in my diet (dietry and supplemental) now my vit d levels are good.

cheers

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Old 11-15-2008, 03:21 PM #24
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Default Thanks to all

for you answers. I just have new pains that I couldn't decide if they are neuropathic pains or pains from different couse. I think that vitamin D defficiency can be thr couse. What do you think about pains couse because of hormones problem (women reasons....)?
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Old 11-15-2008, 03:31 PM #25
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Hey rina,

I have pain that I think is due to hormone problems. Especially around my time of the month the pain increases. The gyn said its dysmennorhea and the pain is from an excess of prostaglandins produced.

I am sure this is on top of the other issues. I feel better when both my Vit D and iron are balanced. I also take meds to balance my insulin resistance which helps the female hormone problems.
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Old 11-16-2008, 11:08 PM #26
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Quote:
Originally Posted by rina View Post
Do any of you know of any connection between Vitamin D deficiency and neuropathy?
I take Vitamin D every single day, along with a multitude of other supplements.

But the BIG THING FOR ME was the Methyl B-12. Whatever it's doing to my feet, all I can say is "thank god", because I don't burn, I don't have pain, I don't have anything. And I have feeling in my toes.

Going on Methyl b-12 was the best thing I ever did. And if taking my vitamin D helps me, well god bless that too!!!!

I'm diabetic. They actually reduced me on my Lantus from 18 to 16, (about 2 weeks or so ago).

My next visit to Cornell is at the end of January.

My goal by April (when the ACCORD program ends), is to be off insulin for good.

Now wouldn't that be amazing?

From taking oral pills for 16 years, and insulin for 4....(starting with 46 of the Lantus), and now being down to 16, well all I can say is "I am grateful as all get out", for learning about nutrition and Methyl B-12 from the people on these message boards.

Just about saved my life.

Docs at Cornell are proud as punch of me. I don't think many of their patients took to the program (eating right, getting their sugars under control), with the same intensity that I did.

I have no idea why my brain works the way it works, but I'm into sprouts, vitamins, healthy eating, etc. and walking.

I still have arthritis but I'm a lot thinner so there's less stress on my joints.

I wonder if I'll really be able to go off insulin. I certainly hope so because next year when the ACCORD study ends, I'll be responsible for the co-pays of the meds.

I asked the doc at Cornell if she thought I would ever be able to go off insulin and she couldn't know for sure. Depends on many things. I have to be much thinner (and I'm not fat anymore), and there's also my age (61).

Lots of variables here.

But I'm determined.

Melody
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Old 11-16-2008, 11:11 PM #27
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Quote:
Originally Posted by Raglet View Post
Definitely have vitamin d use monitored by a doctor - I have low vitamin d (it is now very common in many sectors of the population, not just those of us with PN). I now take one vit d tablet a month to maintain my vitamin d levels in the normal range (I originally had to take them more frequently to increase my level, then I went on to one a month for ever more). I just take it on the first of each month, and I have my vit d levels monitored from time to time.

For me it is vital for my bones as I am on long term steroids so bone protection is essential (also on a biphosphonate and cyclic calcium). Haven't noticed any difference with my PN since my vitamin d level came back up but it's sure good to know that my bones can maximise their use of the calcium in my diet (dietry and supplemental) now my vit d levels are good.

cheers

raglet
Hi Raglet:

I have a question. You take one Vitamin D tablet A MONTH?? How come we take one every DAY?

How much is in your tablet?

Thanks much for the information.

Melody
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Old 11-17-2008, 11:24 AM #28
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Default Rina, I'm forgetting your 'age'? and....

between that and your meds can all play a lot of numbers games on your vitamin/mineral levels and a whole slew of other factors such as asorbtion/malasorbtion issues.
I'm now taking Fosamax +D, Plus calcium +d + Mag..... So I get lots thru the Fosamax, but am requiring more due to other med issues [I'm on post-cancer meds which literally drain calcium out of you! Big TIme!] Mrs D, to me is the wisest source of info.
But also, I'm past menopause and if you aren't there yet or are starting to go thru it for some reason [some folks start early?] Do be again, doubly sure to check out your thyroid with and endocrinologist and have the WHOLE thyroid panel checked. Even if you aren't at the meno stages yet? Thyroid is one of the easier things to 'fix' with all the messes we have!
As for the other 'pains'? Be sure to get a thorough Gynecologist exam [while not pleasant] the whole works can well be worth it in the long run! Best to check it all out and get those 'issues' checked OFF THE LIST OF POSSIBLES . It's one less thing to deal with or to deal with readily. I gotta tell you? That's one thing I don't miss, now that I'm 'post-meno'!
Hugs and keep faith, you will get there! - j 's
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Old 11-19-2008, 04:07 PM #29
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Thanks for your advices.
I'm 52. The right age to start checking almost everything. We have here a program called "the one and the only one". - it is a monitoring program for women. in one day you go throgh the all tests - like memo and many others. very clever since you don't have to spent many hours in many places. And you even get tea or coffee (which I don't drink anymore).

My neuro told me today that at the time of menapose - all the pains and the other symptoms become worse. He doesn't know the answer. Still I'm on idiopatic SFSN (might be from toxic - but can't be prove).
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Old 11-19-2008, 05:11 PM #30
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Lightbulb menopause?

not exactly true.

That's a man for you. (or a doctor for you).

I actually have LESS pain than before my menopause.
But then I am proactive in finding my own solutions.

It has been a year on 2000 IU D3 for me. It is now late
November and I haven't needed my light visor yet! ( I started in early Oct last year)

And Melody... doctors use a D2 RX of 50,000 IU once a month commonly for Vit D deficiency. I think it is better to use D3 daily myself.
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