I am so sorry for your illness. You reallly put in perspective how this disease can affect people so differently. I hope you can find some type of relief from your pain. I know that onremitting pain is horrible, and you have a 5 star example of how bad it can be. Where the docs able to come up with a cause of your PN? Or, is it idiopathic in nature like so many people afflicted with this disease? The problem with this crummy disease, is it is invisible to those around us. We aren't jaundiced, or in a wheelchair....well at least those that are still fighting sensory PN in their hands or feet. Again, I hope you can find a doctor who can work with you and show some concern. Have your tried Lyrica? It has been a much better drug for me than neurontin...just a thought.