Even tho there wasn't anything dramatic to find? Obviously something is 'going on'! Don't give up hope or get passed off.
Listen to your instincts. Persist. 's - j

Don't give up. If the small fibers are damaged, it won't show up on an EMG. That will only detect damage to the long fibers. Small fiber damage is still damage and it still hurts. Was there any discussion of doing punch biopsies? That is becoming the predominant way of detecting small fiber damage as it is less invasive as nerve biopsies.

Hope15, dmouse is exactly correct. I have Small Fiber Neuropathy and my nerve conductive test and emg were normal. But that doesn't mean you are making this up in your head! Keep at them!

Jay

I may have just learned something.

Trying to memorize all the medical terms is ..... well something that is way down on my list.

But .......

If the EMG is the test that they stick little pins (lots and lots of pokes) around the area (in my case both legs/feet if I have the right test) ........... then -

I assume I do not have SF.

My test (if it is that test - it was called EMG) was very clear to the neuro. "YES you have PN and it is worse in your left leg and foot." Which yes it was worse in my left leg and foot than my right. (still is)

My B12 and all blood work was fine (still is) but the dreaded > idiopathic

Do some people have both ..... both large and small?. I guess the answer would be yes - so maybe I did not learn anything about my own PN.

Ron, I think that is one of the best things about this board.....we learn a lot from different members experiences, I know I have....

--it is absolutely possible to have a neuropathyi n which both the larger myelinated fibers and the smaller thinly myelinated or unmyelinated fibers are involved. Typically, this would point to a toxic, nutritional, autoimmune, or vascultic etiology--but that is still a very broad area to investigate.

Hope...good luck with your appointment tomorrow. I hope you get some answers soon!

Would burning skin pain fall under SFN? Does anyone know if SFN would be seen in hereditary neuropathy as well?

I will Jay, thanks for the support.

Good point and thanks for the reminder! No, no mention of doing the punch biopsy, but I will definitely mention it.

Thanks dahlek, I definitely won't throw in the towel. I've got a whole list of questions for the doctor on Monday!