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Old 05-04-2009, 06:08 AM #15
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mrsD mrsD is offline
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mrsD mrsD is offline
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Join Date: Aug 2006
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One has to be careful with terminology here.

I think the word hereditary can be misleading.

1) there are genetic (hereditary) failures in nerve functions...CMT etc represent those.

2) People do inherit the tendency to have autoimmune problems.
So while this may be called hereditary, instead it is called autoimmune (inflammatory). Autoimmune PN can be treated with IVIG, plasmapharesis, or drugs that suppress the immune over-reactivity.

But the folks with genetic PN...do not have a treatment yet.

So I would urge Grisabella to get clarification from her doctor.
Anti-inflammatory drugs would not be helping genetic CMT IMO.
Continuing to use "hereditary" for PN here may confuse those with real genetic PN.
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