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Old 07-06-2009, 01:36 PM #2
Marty SLC's Avatar
Marty SLC Marty SLC is offline
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Join Date: Jun 2009
Location: South Jordan Ut
Posts: 248
15 yr Member
Marty SLC Marty SLC is offline
Member
Marty SLC's Avatar
 
Join Date: Jun 2009
Location: South Jordan Ut
Posts: 248
15 yr Member
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Originally Posted by amit View Post
I'm celebrating almost 4 years with Neuropathy (idiopathic small fiber neuropathy). What I found out was that there are so many with neuropathic symptoms - some of then don't even know that that pains they suffer is neuropathy, since so many doctors don't know about the syndrome, especially when it is small fibers.
How long do you have your PN? what kind? how it started? How long it took till you to get DX? How do you coop with the symptoms? ect...

  • I've had it 12 years now.
  • It started with burning in my arches.
  • Has progressed into my legs, hands and face.
  • I have Idiopathic PN.
  • Took about 3 years to be DX.
  • I cope with the pain mainly with exercise, keeping my weight in check, rest and sleep, eating right, tears not to mentioned prescription drugs. (Lyrica and Tramadol)
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Marty
Idiopathic PN - diagnosed 1999
Last edited by Marty SLC; 07-06-2009 at 01:37 PM. Reason: spelling
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