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08-09-2009, 08:35 AM
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Grand Magnate
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Hi,
I am very interested in learning what you find out. And yet, the result of DNA blood testing was CMT1A. At any rate, it is puzzling. And the fact that on a good day you can walk with a normal stride, etc. From what you say about your maternal grandmother, it is certainly possible that she did have CMT and they just chalked it up to varicose veins, etc. How about your Mom. Does she have any kind of symptoms at all. And then we are back to HNPP which is also inherited. And the toes on your left foot always being numb could be from that too. At any rate, I'm not a doctor of course, but this all certainly seems puzzling. I hope you can get some good answers. By the way, does this neurologist know CMT very well? That is important. Take care and keep us updated. Thank you.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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