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-   -   Dr. Perlmutter on PN (https://www.neurotalk.org/peripheral-neuropathy/221592-dr-perlmutter-pn.html)

caroline2 06-14-2015 01:20 PM

Dr. Perlmutter on PN
 
I love this man and all he's trying to do to help the population who will read and listen to him and his works. I took my speakers off my desk, so I can't listen, but maybe others will. There is a blog to this link too:

http://www.drperlmutter.com/fluoroqu...al-neuropathy/
What's causing peripheral neuropathy? ... It seems that supplementing with a particular molecule, inosine, has been shown to aid in nerve regeneration.

He may mention Inosine in the video, don't know. can't hear it.

janieg 06-14-2015 02:47 PM

Quote:

Originally Posted by caroline2 (Post 1148303)
It seems that supplementing with a particular molecule, inosine, has been shown to aid in nerve regeneration.

He may mention http://www.drperlmutter.com/lipoic-a...ic-neuropathy/ in the video, don't know. can't hear it.

No mention of it in the video, but someone in the comment section posted a link to an article about inosine on another website:

http://www.wellnessresources.com/stu...air_of_nerves/

This is what Dr. Perulmutter has to say about lipoic acid:

http://www.drperlmutter.com/lipoic-a...ic-neuropathy/

________________________

caroline2 06-14-2015 03:28 PM

I just read more comments on Perlmutter's blog and omg, the damage done to so many from these FQ and cholesterol drugs too....just awful and all FDA approved.. How do they continue to get away with these damaging drugs? So so powerful, what will it take?

I first knew about all the FQ drug damage from an FM/CFS group I was a member of since 2006...so much damage from these reported by some members.

I've seen enough just with me and one drug back in the mid 80's, but so much from a close family member.

caroline2 06-14-2015 05:24 PM

Just finished hearing the hour with the Prolotherapy MD here in L.A. and all the call in people in various types of pain. One woman called in with PN and he went thru the was it from diabetes, alcoholism, she said NO. Then she went on to say something about she thinks it was from an anesthesia, I think that's what I heard. She's been thru all the conventional MD's and tests and gabapenten and he went on to say for her to get a SpectraCell vitamin/mineral etc test....and to make sure she is taking antioxidants. OPC's are powerful antioxidants. With my OPC's I take, I still take about 1500mg Vit C daily. This person was hardly familiar with alternative medicine. The Prolo MD is very much in that mode.

baba222 06-14-2015 09:59 PM

Quote:

Originally Posted by caroline2 (Post 1148350)
Just finished hearing the hour with the Prolotherapy MD here in L.A. and all the call in people in various types of pain. One woman called in with PN and he went thru the was it from diabetes, alcoholism, she said NO. Then she went on to say something about she thinks it was from an anesthesia, I think that's what I heard. She's been thru all the conventional MD's and tests and gabapenten and he went on to say for her to get a SpectraCell vitamin/mineral etc test....and to make sure she is taking antioxidants. OPC's are powerful antioxidants. With my OPC's I take, I still take about 1500mg Vit C daily. This person was hardly familiar with alternative medicine. The Prolo MD is very much in that mode.

Did she go into much detail about the anesthesia. I have FQ antibiotics but also had multiple investigations and developed SFN shortly after a surgery.

Any ideas?

caroline2 06-14-2015 10:14 PM

The conversation ended and no further talk on the PN issue, this MD's work is Primarily PRP and Stem Cell Injections to the joints to keep as many as he can reach to not do the joint surgeries. One person did call in with a mess from arthroscopic surgery and some years later knee replacement and she is so bad off from the work she's done...he cannot work with joints that have plastic or metal in them. I have a lot of nerve damage from hip replacement, which made my knee and foot/ankle all worse with shorter leg outcome. The shorter leg caused my body to be so off alignment. I want to do PRP injections so much, but keep putting it off due to finances...insurance does not take care of these alternative treatments.

caroline2 07-02-2015 12:19 AM

Into my 2nd month on Inosine and Sphingolin that I'm taking for Nerve Damage from hip replacement. My right thigh is totally numb and had been burning and tingling for years and since on the above two I can say hardly anymore of the burn/tingle. So have to think these are helping with this damage.

icelander 07-02-2015 05:20 PM

Quote:

Originally Posted by caroline2 (Post 1152210)
Into my 2nd month on Inosine and Sphingolin that I'm taking for Nerve Damage from hip replacement. My right thigh is totally numb and had been burning and tingling for years and since on the above two I can say hardly anymore of the burn/tingle. So have to think these are helping with this damage.

That's pretty cool. I've just started both of those.

mrsD 07-02-2015 05:25 PM

I would like to comment on that Sphingolin again....

Here is why I don't like the thought of this supplement:

http://neurotalk.psychcentral.com/post1144611-3.html

The Sphingolin seems iffy to me and too risky. The bovine sources are often not identifiable as having Mad Cow. I believe a young cow was recently found with the disease. The Prions are difficult to find, and impossible to kill (instruments used on patients for open head surgeries, are thrown away... because they cannot be sterilized). I myself would never take any bovine or other animal organ derived supplement.

I am not aware of any testing of bovine nervous tissue, for prions. I don't believe they exist. They elude sterilization techniques that are used on surgical instruments, and so those used by neurosurgery are discarded and charged to the patients.
Every once in a while you can see news articles of nvCJD passed to patients by wrongful reuse of instruments. nvCJD is the human name for prion disease.

icelander 07-02-2015 05:32 PM

Quote:

Originally Posted by mrsD (Post 1152373)
I would like to comment on that Sphingolin again....

Here is why I don't like the thought of this supplement:

http://neurotalk.psychcentral.com/post1144611-3.html

The Sphingolin seems iffy to me and too risky. The bovine sources are often not identifiable as having Mad Cow. I believe a young cow was recently found with the disease. The Prions are difficult to find, and impossible to kill (instruments used on patients for open head surgeries, are thrown away... because they cannot be sterilized). I myself would never take any bovine or other animal organ derived supplement.

I am not aware of any testing of bovine nervous tissue, for prions. I don't believe they exist. They elude sterilization techniques that are used on surgical instruments, and so those used by neurosurgery are discarded and charged to the patients.
Every once in a while you can see news articles of nvCJD passed to patients by wrongful reuse of instruments. nvCJD is the human name for prion disease.


I'll volunteer to be a guinea pig. If it doesn't do anything I'll let you all know. I have no fear of mad cows.


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