Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-06-2009, 12:19 PM #1
SBOWLING SBOWLING is offline
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Join Date: Mar 2009
Location: Ohio
Posts: 310
15 yr Member
SBOWLING SBOWLING is offline
Member
 
Join Date: Mar 2009
Location: Ohio
Posts: 310
15 yr Member
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Hello Krank and welcome to NT.
I have full body RSD and I had a Boston Scientific SCS for about 2 years. I had it removed last November it wasn't helping. They are very posture sensative. When I turned my head it turned up the stimulation when I sat down it turn off the stimulation. Boston Scientific tried to get it adjusted properly but they were unable. Medtronics makes one.

I see an RSD specialist in Philly he told me I shouldn't have done the SCS to begin with. In his opinion they don't help RSD and it didn't help me.

I see a chiropractor and that really helps as does exercise in water. We are weighless in water and there is no pain.
I wish you the best of luck and if you want to talk more about the SCS just PM me.
Take care,
Sherrie
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