Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-04-2007, 04:17 PM #4
VWBeetle VWBeetle is offline
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Join Date: Jan 2007
Posts: 7
15 yr Member
VWBeetle VWBeetle is offline
Junior Member
 
Join Date: Jan 2007
Posts: 7
15 yr Member
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Thanks for the reply . Story huh ? Well then ,

First of all the hellacious times are over . Yep it hurts , has altered all my prior activities and prognosis is I'll always have it but I'm alive and lost the battle but won the war . After I had learned all about it I had given myself 12 months to get even a tiny bit better or I was going to end it by cleaning a shotgun with the barrel aimed at the ankle . Hence , I won the war .

After the 2003 surgery as a few days went by the pain got worse . Foot sweating big time . I mean almost would dehydrate a person it was that bad . The doctor was very vague , probably afraid of a suit . After aprox 8 weeks I finaly was able to see a pain intervention specialist . Thanks Federal Work Comp for such timely authorization I then was sent for a bone scan and recieved the diagnosis . Went in for the first of 6 of those pain shots/blocks . First one let me have great relief for maybe 30 minutes . The 5 after really did not help and I have not had another to this day .

It has been quite the emotional ride . It was really bad the first year with all that goes with it . I could count twenty seven different pains going on at the same time , in the foot that is and I slept for only 15 minutes or so at a time , 5 times in a 24 hour period for around 4 months . Having tachcardia all my life , well that sleep loss wreaked havoc with it .

I went to therapy 5 days a week for a month . Worthless time spent although they did teach me something I used later . I would not look at my foot . It scared me to or something . Once though I looked and it along with my calf had lost much of it's mass and I said just no way am I going to let this happen . I took my pain killers and worked it out several times per day and ate food like a weight lifter trying to build muscle . It worked ! I got the mass back and maybe 1/2 the strength but my cholesterol shot up to 310 . Whooa there what a problem . Cannot excersise the amount needed to wear off the weight gain and high cholesterol numbers so ..... I'm in limbo of sorts and taking meds to reduce it .

I have gone through it all and even experienced the mental horrors that come with it but I need to say to anyone that is reading this and struggling with RSD .

Hang tough and do physical type things to try to at very least not let it eventually cause total loss of limb . RSD won't kill us and of all the more severe conditions and diseases a body can get I am thankfull my lifes journey has only included RSD to this point . It coulda been much worse . RSD is tough to manage but the human mind can overcome the most of it as time goes by , the RSD eases up a bit " in which it will " and we learn to deal with it in our way since everyone is a bit different in circumstance .

I love life and my time thats left on this earth is very valuable to me . More so it seems than before RSD .
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