All of this pain and suffering. The misunderstandings and explanations that go along with it. The lack of advocates, and the insurance companies who are defiant and become enemies.
I think, this, what we have, and other things going on in the world since WWII and on, is on a Biblical level.

The only way that truly works for me (coping), is to simply keep my faith. I think we all get worked up to a point that we're in a Panic. And, that's Not going to help us.
I cry, I pray, I take a break, I feel a little better.
There are times that I really hate to see the daylight in the morning. I just want to stay asleep, then it seems that I'm never really asleep, it's some point in between... Transomnia.

I've been up and down on the meds, because of the second accident, that caused my tbi.
and REALLY upped my rsd and tos pain, herniated some discs. I've since been able to back off lots of that now.

I never had any real "thinking" issues, before my second accident. I got by on a tiny dose of methadone, and some valium, and Imetrex. (migraine).

Now, I take 5mg. of Aricept, in the AM, and it sharpens up my thinking, it's an Altzheimer's med. It took lots of trial and error to get to that, some of the trials were huge errors!

This disease IS a job! I think that everyone here, should really recognize that, and give yourselves a pat on the back for doing what you're doing, and getting through it!
This is a job, that NOBODY, (Even those @ Workers Comp) would take for any amount of Money)!

We sweat, more wash to do. Devices to maintain. Scripts to fill, Doctors to go to, working with the doctors to find a "little bit better way" and on and on.. then, there's the explaining to loved ones and strangers.
"Ya look ok!" Yea?
Thanks.

What would you give for a cure and to go back to "the way things were"?

Well, we can't.
Everything changes, that's the only constant.
(Maybe, this will too). Who's to say?
After all, We're NOT our job. We're Not what we own, We're Not going to take anything with us, except the love we gained and gave.
And, when I'm lying on my bed, before breathing my last, I think that my only regret will be what I didn't do!

Sometime, when you're meditating, or praying, think what happened in the last week, month or season, that you enjoyed. The little things. Look for more "little things, that you love". And, think about how to get more of those, and start stringing them together.
You will survive this.
The longer you go, the more "little things" you'll find that will help reduce the pain, and ease your burden. I might even dare say that, you get a little used to it... as time goes by, and you get better at dealing with it. It's just there.

So, Enjoy the good times, and skip over the bad times as best you can...
And, come back and tell us all what helped, and what you enjoyed!

love to all,

Pete

re AintSoBad. Hear hear.

Well said.

Even this is an opportunity. It might be one no one would choose but it's still an opportunity.