Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-13-2009, 03:24 PM #1
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Unhappy Update on Dew's IME for % of disability on WC claim

I went to IME doc for my atty.,to get a % of disability for WC injury. I left the bldg. in tears.The outlook for me getting any better is bleak.I have an incurable disease that has stolen my active life away.

My life is less valuable than a pro football player because of the way WC law is written. I would not be referred to top RSD/CRPS doctor for review.

My heart is bruised from this ordeal.
No further treatment will be granted other than PM and psychological.

Tears began to fall, and the doc looked at me point blank and said, "You don't need to cry." I told him that I couldn't help it, just like I couldn't help not wanting my legs to dangle off the table(more painful), at his insistence! Doc kept pulling on my legs, and I was pushing him away telling him "NO!"

He was speaking in recorder and stated CRPS with secondary Major Depression and Anxiety..both lower extremities, swollen and touch is not acceptable to patient;further,full body CRPS is future prognosis, due to patient not wanting me to touch her,anywhere as she reports pain is throughout her person. Also, I was to see current PM doc, who is well known in PM field, 4-6 times per year,and continue with psychological counseling.Finally, he told me that my atty. was very good at court and I would not have any problems.

The entire office was wearing blue mask to avoid the flu! However, no gloves to touch the patient.

THAT'S IT!
To top it all off, this was MY atty.'s IME doc. I cannot imagine w3hat WC atty. will do to me.

I am so sad.
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 10-13-2009, 03:30 PM #2
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I am so sorry, he was a jerk. I wish I could help you. My thoughts and prayers are with you, Your life is very valuable, don't ever think that it isn't.

Sandy


Quote:
Originally Posted by Dew58 View Post
I went to IME doc for my atty.,to get a % of disability for WC injury. I left the bldg. in tears.The outlook for me getting any better is bleak.I have an incurable disease that has stolen my active life away.

My life is less valuable than a pro football player because of the way WC law is written. I would not be referred to top RSD/CRPS doctor for review.

My heart is bruised from this ordeal.
No further treatment will be granted other than PM and psychological.

Tears began to fall, and the doc looked at me point blank and said, "You don't need to cry." I told him that I couldn't help it, just like I couldn't help not wanting my legs to dangle off the table(more painful), at his insistence! Doc kept pulling on my legs, and I was pushing him away telling him "NO!"

He was speaking in recorder and stated CRPS with secondary Major Depression and Anxiety..both lower extremities, swollen and touch is not acceptable to patient;further,full body CRPS is future prognosis, due to patient not wanting me to touch her,anywhere as she reports pain is throughout her person. Also, I was to see current PM doc, who is well known in PM field, 4-6 times per year,and continue with psychological counseling.Finally, he told me that my atty. was very good at court and I would not have any problems.

The entire office was wearing blue mask to avoid the flu! However, no gloves to touch the patient.

THAT'S IT!
To top it all off, this was MY atty.'s IME doc. I cannot imagine w3hat WC atty. will do to me.

I am so sad.
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Old 10-13-2009, 05:31 PM #3
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Frown I am so sorry Dew....

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Originally Posted by SandyS View Post
I am so sorry, he was a jerk. I wish I could help you. My thoughts and prayers are with you, Your life is very valuable, don't ever think that it isn't.

Sandy
Absolutely.. I second that thought..your life, as well as, all of our lives are very valuable.. RSD is so ugly, that at times it makes us feels sad and hopeless.. I can feel your pain and have spoken your very words.. At times I can't think of what can or will happen tomorrow, due to my limitations but I know in my heart that the love and support of those around us will help with my scared, sad feelings... I will make the most of what is happening to me... do we have to right to feel sad.. yes, we do!!! We have been dealt a pretty difficult hand to play but we must play those cards out the best we know how to.. Dew, you are not alone in your travels nor feelings.. I will continue to pray for you, as well as, our friends on this supportive forum... Try to look up and smile.. as I hope tomorrow may be a brighter day for you...

Dr.s are people who many times not only lack sensitivity but also knowledge about our RSD and it's pain.. one never knows by description.. you have to live with it.. and it's repircussions...

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Old 10-13-2009, 08:25 PM #4
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Dear Dew,

I am so sorry for your ordeal. What a big fat bummer. Can you consult with another lawyer and get his opinion on what happened? Sounds kind of crappy to me, and not what I would really want either.

Hang in there. We are all routing for you.

XOXOX Sandy
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Old 10-13-2009, 11:27 PM #5
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Quote:
Originally Posted by SandyRI View Post
Dear Dew,

I am so sorry for your ordeal. What a big fat bummer. Can you consult with another lawyer and get his opinion on what happened? Sounds kind of crappy to me, and not what I would really want either.

Hang in there. We are all routing for you.

XOXOX Sandy
Dew,
I am sorry the appt turned out badly. Talk to your attny and see what he suggests and try to stay calm. You don't want to cause more pain from the stress. I know that is hard but thats what the attny is for. Hugs.
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Old 10-13-2009, 11:35 PM #6
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Quote:
Originally Posted by Dew58 View Post
I went to IME doc for my atty.,to get a % of disability for WC injury. I left the bldg. in tears.The outlook for me getting any better is bleak.I have an incurable disease that has stolen my active life away.

My life is less valuable than a pro football player because of the way WC law is written. I would not be referred to top RSD/CRPS doctor for review.

My heart is bruised from this ordeal.
No further treatment will be granted other than PM and psychological.

Tears began to fall, and the doc looked at me point blank and said, "You don't need to cry." I told him that I couldn't help it, just like I couldn't help not wanting my legs to dangle off the table(more painful), at his insistence! Doc kept pulling on my legs, and I was pushing him away telling him "NO!"

He was speaking in recorder and stated CRPS with secondary Major Depression and Anxiety..both lower extremities, swollen and touch is not acceptable to patient;further,full body CRPS is future prognosis, due to patient not wanting me to touch her,anywhere as she reports pain is throughout her person. Also, I was to see current PM doc, who is well known in PM field, 4-6 times per year,and continue with psychological counseling.Finally, he told me that my atty. was very good at court and I would not have any problems.

The entire office was wearing blue mask to avoid the flu! However, no gloves to touch the patient.

THAT'S IT!
To top it all off, this was MY atty.'s IME doc. I cannot imagine w3hat WC atty. will do to me.

I am so sad.
Dear Dew,
I am so sad for you. Those are such harsh words to hear, and I can understand your heart hurting. My heart hurts for you too. It brought me back to when a new neurologist told me I had generalized or full body RSD. That is when I needed a psychiatrist. He suggested two names, whom I didn't like and found my own. Most Drs. and people in general have not a clue what we go thru and the losses we experience. It's huge, our active, pain free life is taken away. It really takes time to process, and please know I believe you to be very strong and you WILL find meaning in your life. Maybe not what you thought your life would be like, but you can and will have a meaningful life, full of love for your family and love for others whom you will be of great encouragement. It's good you are taking time for yourself to process this as you go thru the legal harang.
Please know my thoughts and prayers are with you. Remember, take time for yourself. Journaling will help you work thru the losses you are facing.
I'm finally over the flu. My immune system is so weak, it took 2-3 months to get over. My RSD Dr. wants me to have the flu shot and swine shot? I'm so scared to. I have never had the flu shot.
I'm still sleeping 10 hrs a night and pain level is down as a result. We sold part of our business and kept part. It's cooling down here. ----high 90's I think 98 this weekend, but doesn't feel that hot.
Laura took me shopping for a dress Friday and attended a wedding Sat. It was nice-on one of the golf courses and nice weather.
I'm feeling much better, flu was really rough and long. Last night I tripped over my laptop cord and went clear across the room to keeping from falling, but fell into another chair. Rug burned hand and purple knee. Nothing broken, just a sore low back, knee and hand. I'm so grateful nothing was broken.
Please know I'm thinking of you every day. Your friend, loretta soft hugs
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Old 10-14-2009, 02:12 AM #7
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hi Dewi'm sorry for what you are dealing with but i would like to help. I have been living with the DRAGON know for 31 years and the best advice I can give you is like a Doctor told me is that this RSD will not kill you unless you let it you need to find some you love to do or what to do for me i love to snowmobile and i'm working to buy a corvette, when I'm down i go out and look at my sled and reimber how much I injoy this and Thank god for giving me this i go riding even when i have a10 day the doctor told me I can not make it worst my buddys watch out for me and after my pain will go down because i'm doing something. the worst things with RSD is thinking all the time & stress and the feeling of hopeless you have to fight that all the time or the DRAGON WINS you lose. and have any kind of legal battles makes this worst I have been better a little bit for me since i Won my SSDI it feel like i have a big truck off my back but do not worry about what happen at the IME it is just part of the Game and you know what you what and that is to WIN so keep faith and i will pray for you and i hope i cheered you up a little bit , I'm starting nerve block on Monday 6 -8 total for my shoulders and ams, I also have to have to total shoulder replacements but the doctor are scared because of the RSD , GOD BLESS DEW love you keep faith
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Old 10-14-2009, 05:14 AM #8
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Default Ohh Dew I am so sory you are hurting..

Aww hugs Dew.. he sounds like he has no bedside manner at all..
Some of my doctors too have been scocialy inept.. but their reports can pack a wallop even so.

see In that report the fact that you wouldnt let him touch you is actualy a RSD symptom, alodonya (sory bad spelling?). It can be made much worse by stress and anxiety, and I think personaly that he is wrong about the spread reasons.
The alodonia can be helped with tactile stimulation... self stimulation, we'll start a thread on it soon, it realy does help.. I know, hmm I think Ali did a thread on it recently..

I know it hurts but from what I know of % of disabilitys that doctor just wrote a report that will realy help your case.. I know it probibly dosn't sound like it to you, but I have delt with alot of dr's reports and WCB till I wanna puke (sory for the grafics).

Quote:
He was speaking in recorder and stated CRPS with secondary Major Depression and Anxiety.. both lower extremities
He is harsh yes but Dew I think he is also trying to help you, at least he is not mimimising your disability like so many do, major depression can be a large %tage and without a diagnosis of depression "Secondary to CRPS" you can be stuck like I am paying an arm and leg for two kinds of antidepressants because WCB wont pay for them, all because of the wording in a doctors report.

My doctor attributed my depression to my being disabled, not secondary to the RSD as it should have been.. You see? it's all a matter of how it is worded, yours is obviously a doctor that knows how to word things for unquestionably and for impact, probibly had alot more practice, my first doctor had never heard of RSD and referred to the WCB doc for my first 3 months but he wrote a great CPP disability report (lots of experience, and knew what it takes to get it accepted when it is deserved).

Because Your atorney and his IME live breathe's and sleep's this blunt termanology they forget that their clients/people have feelings.. and most likely haven't adjusted to their situation at all yeat.

Quote:
swollen and touch is not acceptable to patient;further,full body CRPS is future prognosis, due to patient not wanting me to touch her,anywhere as she reports pain is throughout her person.
Edema reported. Alodonia reported. Prognosis full body CRPS. [All good to have in an IME report of this nature] Pain throughout could be fibro could be spread, either way you will be able to deal with this Dew. reporting it was also clever of him, sory it hurt you.. His reporting your avoidence of touch is like reporting a cold limb, it gets more attention because it can fortell problems to come [fear not we the forum folk have delt with thet one]

Quote:
Also, I was to see current PM doc, who is well known in PM field, 4-6 times per year,and continue with psychological counseling.Finally, he told me that my atty. was very good at court and I would not have any problems.
PM doc 4-6 times a year.. if something comes up.. some new symptom or pains then the perhaps the PM can recomend a specialist, or the attys IME if it's for a new symptom or such.
Also he told you your atourney was good and that you would not have any problems.

I am not trying to be insensitive my friend I am just trying to help you see the other side of it, this is a very good report for your court case.


let me know if you wanna chat.
Sandra
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Old 10-14-2009, 09:13 AM #9
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Heart Thank You All

I appreciate your words of encouragement, and each of you have helped me. I still can't stop the tears from flowing. Yes, I am over sensitive;however, to think that THIS is the BEST anyone can do for me is unacceptable. I was dx 15 months out from initial injury. Too late for blocks, or anything!

The IME's nurse said that I should be glad it happened now, not 7 years ago, when RSD/CRPS was not really considered a proper dx. I replied, the outcome is the same,isn't it? I have no active life, I am homebound, and I still deal with doctors that just aren't informed. This didn't have to BE this way...


love you,
Dew
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 10-14-2009, 10:35 AM #10
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Hang in there Dew, things will calm down in time, you'll see. Your family will look after you and you'll be up and about. You're going through that stage where its dark and unknown but you'll soon see yourself take control not it controlling you.

jim
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