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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-15-2009, 04:26 PM | #1 | ||
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Has anyone heard of or tried neural therapy. It is commonly used in Germany to treat conditions like rsd and many other disorders. I have been told it is usually successful if you can pinpoint the orgin of or the onset of your Pain. For most of us that is very easy. There is a woman in Tampa that claims to have "cured" several people wtih full body rsd using this therapy as well as many people with other severe chronic pain issues. I am curious if anyone has heard of this therapy or knows of anyone who has tired it. Below is the link and a quote fromt he site. I'm really interestd in this, could it be this simple?? She swears her results have been incredible. Please let me know what you think. I'm considering this but I am really tenative.The one time I begged my Pain management doctor to inject directly into my foot because I thought it would help the severe pain I was having- it was a huge mistake. The swelling and fire that followed lasted for weeks. I could not walk at all. so the thought of letting someone inject diretly into my scar on my shin, my orginal injury site is terrifying. But when you speak to this doctor she is very convincing. Next Im going to ask to speak to people she says she has helped I think. I need advice. thanks so much, CZ
The simple theory is below, I think it makes alot of sense. what do you think? Quote:
The link to this site is : www.drkaslow.com Last edited by CZZ74; 10-15-2009 at 04:31 PM. Reason: More info |
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10-21-2009, 09:52 AM | #2 | ||
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10-21-2009, 10:53 AM | #3 | |||
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I haven't hear of this before CZ but I'm checking with my German medical contact.
I'll let you know when I hear back. MsL |
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"Thanks for this!" says: | CZZ74 (10-22-2009) |
10-21-2009, 11:34 AM | #4 | |||
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There's a guy in LA, Aaron G. Filler, MD, PhD, who used to be on the UCLA faculty, who's been doing this surgery - under an MRI thank you - for years. Although his website used to list a number of unpublished papers dealing with the treatment of CRPS, I can't seem to find them now. Here's his specific page on Nerve Entrapment, you can link to the rest of his site from there: http://www.nervemed.com/nerve-entrapment/
What I'm advised is that there may be just as much risk in creating new scar tissue/adhesion in the surgery as you were attempting to alieviate in the first place. That said, I spoke to a lady a few years ago who swore by the procedure. So who knows? Mike |
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"Thanks for this!" says: | Mslday (10-21-2009) |
10-21-2009, 01:11 PM | #5 | |||
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My German medical contact has used the neural therapy in his practice for years with good results. Yes it is true that it is widely practiced throughout Germany. His experience is that it was best used for people who had neck or lumbar associated pain.
He said he would be very hesitant to use it on an RSD patient because of the punctures. MsL |
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10-22-2009, 07:07 AM | #6 | ||
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10-22-2009, 07:08 AM | #7 | ||
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10-22-2009, 05:03 PM | #8 | ||
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CZ
I have nerve entrapment in the back of my heel,,Which is where the rsd [may ] have started. Ive heard that there are dr's who are willing to do the surgery to free the nerve but theres alot of dr's who will not ,due to the fact as mike stated,it can create more scar tissue,,Ive heard that alot of dr's who do the surgery will put your foot in a boot for weeks at a time so that the surgery can heal and no scar tissue forms[Scar tissue after surgery ussally occurs because of going back to activitys too soon in which the body forms the tissue to protect the area ,but in alot of cases ,hinders} similar to letting a open wound heal from the inside out instead of stiching it up. But the problem with wearing the boot,with a rsd patient , is the inactivity can make the rsd worse therefore we have a catch 22.........My hope is in God |
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"Thanks for this!" says: | fmichael (10-22-2009) |
10-22-2009, 06:29 PM | #9 | |||
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bobber -
In light of an August, 2009 article from the Journal of Neurosurgery, for which I only have an impressive abstract, and assuming that the not insubstantial cost is somehow covered by insurance, you might very well want to get an MR Neurography, in case there is any ambiguity as to what's going in down there: J Neurosurg. 2009 Aug 7. [Epub ahead of print]http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum While you're at it, you might also want to check out "The value of MR neurography for evaluating extraspinal neuropathic leg pain: a pictorial essay," Moore KR, Tsuruda JS, Dailey AT, AJNR Am J Neuroradiology, 2001 Apr;22(4):786-94, free full text at http://www.ajnr.org/cgi/reprint/22/4/786.pdf Department of Radiology, Section of Neuroradiology, University of Utah School of Medicine, Salt Lake City 84132, USA.http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum Simply put, MR Neurography appears to be gaining traction that it didn't have a few years ago, subject to at least one unique technological issue in the interpretation of the scans. "Magic angle effects in MR neurography," Chappell KE, Robson MD, Stonebridge-Foster A, Glover A, Allsop JM, Williams AD, Herlihy AH, Moss J, Gishen P, Bydder GM, AJNR Am J Neuroradiology 2004 Mar;25(3):431-40, free full text at http://www.ajnr.org/cgi/reprint/25/3/431.pdf Comment in:http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum Finally, there remains the possibilty that if this imaging technology really is as good as it has been claimed (and operated by people who are equally aware of its foibles and limitations) it may indeed become possible to successfully resolve nerve entrapments through surgery, through the insertion of something more pliable that an external boot, but from what I can tell, neurosurgeons are still stuggling with the problem in the presumeably more straitforward situation of treating carpal tunnel syndrome, and although I did see a reference in an abstract to the use of so-called "fat pads," I have no idea whether that's in lieu of the standard cast, which I doubt. (And treatment oucomes for carpal tunnel syndrome appeared to predominate running a PubMed search under "nerve entrapment surgery scarring.") For what it's worth. Mike Last edited by fmichael; 10-22-2009 at 07:01 PM. |
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10-24-2009, 07:15 AM | #10 | ||
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The doctor I am talking with does not use surgery, especially since I do not have nerve entrapment or didnt, she uses injections of provicaine around the orginal injury site, actually directly into the scar. the belief is if these nerves are rewired the rest of the bodys nervous system will follow. It sounds so simple, the only thing holding me back is , well two things, the pain of the procedure, and the pain that could follow the procedure. I belivie there is a chance it could make things much worse for me if thats possible. this doctor is so confident and keeps asking" if youd do the coma , Why wouldn't's you try something as simple as this?" It just that question she keeps posing that makes me hesitate. If she doesnt understand what can happen if this damages the nerves further and really fires them up again precoma statue- it worries me. thank you for adding to this, Im just very nervous. it seems like out of all of us someone else would have heard of this or tried it.Thank you again and God bless, cz Last edited by CZZ74; 10-24-2009 at 07:21 AM. Reason: spelling |
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