Gail,
First,
Don't try to sit in a pity party, ok? You'll get past it.
WE all get there, but, it doesn''t get us anywhere.......

Whatever the cause, dear, we all come to the same place.

I'm 53, and have had rsd since 27. then, in 98. I acquired an TBI, (traumatic brain injury), these two took me through two EVIL divorces. I thought ladies were nice and kind. NOT! I got my ars torn out! again, and again! (Not that Men are better).
Dam, I thought All ladies were nice and kind, I will NEVER Think that again! Each person is to their own. (I simply made poor choices, so, in the end, it's my own fault).

Anyway,
It's about taking care of yourself.
And, you must do this!

Seek what your angels want you to want! Your Dreams!
Don't lose site of them!
Ever!

Then, find a good doctor, who will help you with that!!!

A Neuro, who's a good pain management doctor. forget PM doctors, they's full of shoit! (I saw a show on hulu, that was an expose' of PM docs).
Find a Neuro, who will let you dream your dreams!!
That's OK! and GOOD!

Then, carry on yourself! Forget the pain occasionally! (You must, to be Yourself!) When you feel a bit better, do something for yourself!
YOU have the pain, it doesn't have You!

Then, keep an open communication with your neuro!!!!!
OK?

Anything else you need, you come right back here.
I'll be here for you! And so will all of us!

There are too many fool hardy doctors, that aren't worth their weight, in lead.

PM me, if you wish....
I'll be here for ya! Cry if you wish! Get it OUT!

Then you, YOU, carry on! For yourself!

I often, cry myself to sleep. thinking, dreaming about my children, my daughter especially, who was to run my business. (my Son, was to run my 2nd busniness.)
I cannot get past this...
I cry, and, I cry.

Perhaps, we can help each other?

We'll see.......

Pete
asb

Thanks for your message, Pete. I don't know if I'm replying correctly... this site is confusing me some. But, anyway, thanks so much. It's been a hard week. I hope I can be positive on this site eventually. I really do appreciate your thoughts and maybe we can help each other! Thanks, gail

Gail,
Never worry if you're replying correctly, I make mistakes most times I reply!
As I said some women, men, etc. are not good, so too it goes for doctors.
(MY apologies to all, if I sounded as though I was taking a swipe at all women).
I've been through more than a hundred doctors, but, that's because I got this thing back in '83. And, the law in my state was for unlimited coverage (Auto). Which just gave the doctors a field day!
There are some neurologists better than others, some PM's better than others. (the expose' show I saw was about FLA pain clinics).

Anyway, we don't even know what question to ask, or how to describe it... it's OK! Just say what you feel, we'll try to help.

While we've all been "through it", we've all been through something "different", too.

I'm glad you found us here, and are getting some answers.

Also, as far as amputations go, they almost never work with rsd. Most end up with the pain (even rsd pain) remaining.

I wish you the best!

Pete