Originally Posted by Nanc

Welcome Shelby!

I have RSD/CRPS in the right side of my face, both hands, left arm, left leg and possibly my right leg. I was losing the use of my hands. I had the trial on my left side and it was successful, so I had the SCS implanted in June 2011...actually two of them implanted (cervical and thoracic). My pain was reduced drastically and I regained the use of my hands. I am by no means pain-free, but pain reduction is huge when I was a 9/10 all the time.

Now, the thoracic SCS has not given me as much relief. In November, they went back in and changed the leads to paddle leads since they moved and were causing more pain. Right now I am having some increased pressure in my lower back and the dr is going to do a RFA procedure (if the anesthetic injections help). I still use the thoracic SCS and it helps, just not as much as it should.

The dr recommended the SCS for me since we had exhausted everything else. I do not regret my decision to get either one implanted. Yes, we are still tweaking one of them, but my pain is reduced. As soon as the stimulators are turned off, the pain is more intense. I was miserable when the trial was over and couldn't wait for the permanent to be implanted!

Everyone is different and responds to each treatment differently. You just need to take all the information you have been given and research it. That way you can make the best decision you can for yourself, and one that you can be comfortable with.

Wishing you all the best,
Nanc

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