Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-24-2012, 08:18 AM #9
CRPSjames CRPSjames is offline
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Join Date: Feb 2012
Posts: 94
10 yr Member
CRPSjames CRPSjames is offline
Junior Member
 
Join Date: Feb 2012
Posts: 94
10 yr Member
Default New here not sure how to navigate yet

I have not gotten the hang of navigating the forum yet. I posted something but it ended up on a thread different than I selected. I am guessing that I should have still been using this thread since I am new.

Anyway, I am providing feedback that I hope helps someone else out.

I continue to make progress from the CRPS spread due to having a Spinal Cord Stimulator. I am now off all narcotics!!!! Withdrawal was a very rough road. For anyone considering this process please take it very seriously.

I was hospitalized, still had a rough time and they forbid me to use my tDCS device. (No problem, the nurse who confiscated it sent it home with a compliant relative who promptly sent it back with a friend who stood guard at the bathroom door for my treatment and arranged a schedule of friends and relatives to do the same for the duration of my stay)

What a difference it is being off of Fen patches and other mind-clouding drugs. I didn't know how my thinking had been so badly compromised.

Thanks to tDCS I am now setting my next goal on using a cane. I inherited my great grandfather's cane that he carved and it is now hanging by the door. I hope one day to walk out the door with it.

The other news is that someone I met at the doctor's office, who also has CRPS, has had the same reaction to the SCS that I had, is now using tDCS. Since I felt very bad about wholeheartedly recommending the SCS to him I initially thought I would be the last person on earth he would want to hear a suggestion from. While in the PT's office his wife was being treated in the next bed and saw my amazing progress and the rest is history. He was very slow to respond and in fact for the first two weeks had no response. He changed electrodes positions over the weekend and is now responding well to the treatment.

Now that I am through the whole med withdrawal thing I will keep posting my tDCS progress. I am currently treating three times a week, once a day for twenty minutes, next week I will be dropping one day and so on until I stop treating.

Does anyone know how long I should post in this area before trying another thread? Does anyone know why one post went to the wrong thread and why another vanished as I was typing it? (Maybe I was too slow typing using one hand-I now use voice recognition)

Thank from a newbe!
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