Quote:
Originally Posted by catra121
Welcome to NT. Sorry to hear what you are going through. I've never heard of cryoablation for CRPS and I'll be very honest and say I don't know much about it. But with "cryo" being part of the word I assume that means that there is ice involved in this treatment in some way? I would just caution you that with CRPS/RSD the rule of thumb is NO ICE because this can cause spread. Many doctors are not very knowledgeable about CRPS so I hope that you have one who IS knowledgeable and who specializes in treating the condition. I know that when you are new to the condition it can be very hard to determine if you doctor knows what he is talking about because you don't have the experience with it yourself and you have not had a chance to talk to people who are going through the same things. But if a doctor tells you it can be "cured", that it cannot spread, that you should treat with ice, that you should immobilize the limb, or that it can only every be in an arm or a leg...those are typically red flags (all of these of course apply AFTER the Dx or suspicion of CRPS and not before).
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Thanks very much for your advice, I am doing physical therapy though I am limited to what I can do. The procedure involves a needle that gets really cold when they put it on the nerve. My doctor has explained that this is not permanent and may only last a few months. I have talked to another patient who gets this done and said it helped, after oing research I found a study where it helped 6 out of 10 patients but it is a rare procedure for a leg, I honestly just want to get back to work, and if some of my Pain went away maybe I'd be able to do more at physical therapy and gt strong enough to work.i guess all I can do is hope it will work.
04-18-2012, 01:54 AM
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