Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-20-2012, 07:31 AM #10
NerPain4 NerPain4 is offline
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Join Date: Mar 2010
Location: Pacific NW
Posts: 37
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NerPain4 NerPain4 is offline
Junior Member
 
Join Date: Mar 2010
Location: Pacific NW
Posts: 37
15 yr Member
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I have CRPS from TOS, basically. Thin female with 8 yr history of computer workstation use at a fast paced job. Non-ergonomic workstation. Pain began with severe onset of pain in trapezius mm, levator scapulae mm area, Right side, then left side. Pain then "spread" to bilateral forearms with severe muscle/tendonitis, radial tunnel. Suffered and continued to work full time for 6 months because I did not have sick time off/employee benefits...until I became disabled. Had physical therapy with 4 different p.t.'s, had diagnostic exams which were all confirmatory for TOS (with vascular component). Finally saved up enough to have the surgery for TOS on one side. Am still disabled by pain and symptoms today, am now fighting with WC (which was obtained after a trial determined I was an employee) to obtain SCS for pain management.

Am really frustrated with battling WC for medical care and benefits! Worker's Comp is evil and responsible for prolonging my suffering and causing more injury to me.

If CRPS was treated earlier with Physical Therapy it would not have gotten so refractory. I knew something was wrong when my golf-ball sized knot above my scapula was "sweating" during sleep. I would wake up with 10/10 pain.

Now that I have had the rib removed, the hatchet knife is out of my trapezius, but I have burning, needles and boring, burning pain in my fingers, hands, arms, upper chest, upper arm, shoulder, below scapula, neck, up to ear. And flareups will knock me down with left sided pain. When the pain has been dialed down the best it can get to is a 4. And then even taking a short walk or drive will aggravate the pain!! My brachial plexus has a migraine! It is not living this life of pain.
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