Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-06-2009, 08:32 AM #1
sdlevitt sdlevitt is offline
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Join Date: Nov 2009
Location: roswell, ga
Posts: 13
10 yr Member
sdlevitt sdlevitt is offline
Junior Member
 
Join Date: Nov 2009
Location: roswell, ga
Posts: 13
10 yr Member
Default 10 1/2 year old just diagnosed...

my child hurt her foot 7 weeks ago. One dr casted her even though there was no apparent break for 10 days, and then gave her the cast boot. The pain is below the pinky toe. We went to another Dr a few weeks later, since her pain was not getting better and she still could nto work. He diagnosed hypersensity and perscribed PT. Over the course of 2+ weeks we got her past the point of where slight touch hurt and got her in a shoe! We even got her to skate (though not walk yet). Every time she put her foot on ground she would complain it hurts. She was walking on her heel. On PT on monday she even did take a few steps in pain.
Then tuesday morning came and she was in more pain than ever before. We are back to where the slightest touch, a sock, etc hurts her foot. We went to a new Ped Ortho who said it was RSD. I am trying to get into a pain clinic for children here in Atlanta and there is a 5 week wait, even with RSD!

All my child has done since yesterday is cry and say that the pain is even worse. I know that some of it is due to teh diagnosis. Her main thing is that she is insisting on getting an MRI. She doesnt believe that there is not something real wrong with her foot. She wants to know why she was almost walking on Monday and now things are worse again. That something ahs to be wrong with the foot since she was using it and it got worse. I have the same question.

The Dr yesterday said that after 7 weeks any real injury would be better and that in kids bones will break before tendons get hurt. he also said that the foot was somewhat red, though I could not see it as much as he sees it. I am waiting for the pain specialist to return to my call. I was faxed a bunch of info.

So why did she get better after therapy and using the foot and then get worse than before like that? Also, I read about Cleveland Clinic here, but what other Pediatric options do I have. What about meds? do they work. Mirror therapy. I tried to take away teh crutches, but she wont let me. It was the only way I could get her to school. She did nto want to go to school today period, but we eventually got her there. She is in private school, so that really helps. she has a friend that got to stay home with a sprained knee and got an MRI, so I am sure that is where her desires are coming from, but she doesnt understand that her injury is different. She doesnt understand how its messages going to brain, but the foot "physically" is ok. I was so hopeful when she skated last week.

One very sad mama.
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AintSoBad (11-06-2009), fmichael (11-06-2009), loretta (11-06-2009)
 


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