[mellowguy]

To everyone who suffers with this horrible and debilitating disease, sometimes the most simple pleasures we have available to us can relieve or even lessen the pain and suffering we go through. One of these pleasures I have found to work for me is a plate or bowl of comfort food and your favorite music listened in a soft tone. Any music that soothes the soul is better then listening to nothing except our own misery that comes about with each agonizing pulse. For me..Listening to Pink Floyd brings comfort and helps to melt the icy grip that blankets my mood. Your mood can reflect the amount of self pity and can be corrected by ones own simple act of pleasing yourself. Have a pain free day/night. Keep safe all.

[AintSoBad]

Originally Posted by mellowguy

To everyone who suffers with this horrible and debilitating disease, sometimes the most simple pleasures we have available to us can relieve or even lessen the pain and suffering we go through. One of these pleasures I have found to work for me is a plate or bowl of comfort food and your favorite music listened in a soft tone. Any music that soothes the soul is better then listening to nothing except our own misery that comes about with each agonizing pulse. For me..Listening to Pink Floyd brings comfort and helps to melt the icy grip that blankets my mood. Your mood can reflect the amount of self pity and can be corrected by ones own simple act of pleasing yourself. Have a pain free day/night. Keep safe all.

Hmmm....
Ones own simple act of pleasing yourself.... uh, OK!

Here's some suggestions for ya MG!

I recently Re-Discovered what you speak of!

My first (teenage-dating myself), musical heroes were two bands.
Three Dog Night, and Chicago.
I recently was befriended by Chuck Negron, the main singer from TDN, on Facebook, and, Danny Seraphine, from Chicago. (whom, I just saw recently, at a renovated theatre, playing better Chicago music than Ever, as CTA, (California Transit Authority).
All of these, TDN, Chuck Negron, and CTA, are available on iTunes, or Amazon, wherever you shop for music. I HIGHLY suggest them! As are everyone I mention here!

When these bands were (done), in the early/mid 70's, I moved quickly to Faces (Rod Stewart), then to Southern Rock.
Lynyrd Skynyrd, Outlaws, CDB, MTB, ABB. etc..(Charlie Daniels, Marshall Tucker, Allman Brothers). I became close friends with Hughie Thomasson, who wrote "Green Grass & High Tides" (Outlaws) Hughie, RIP, and he was in Skynyrd for a decade. I've been backstage with all of them, from the Allman Brothers, to my own band.

Playing music is a REAL release!

Now that I'm stuck in an apartment, (I used to play in front of more than a thousand folks, not huge, but, enjoyable). Nothing, could take my pain away more! NOTHING.
I have a BB Les Paul, and a Mesa/Boogie Amp, with an extension cab, and, man, we rocked! I used to "stare" at guitar players, and, to be "stared at", by the crowd, is such an inspiration, you absolutely must deliver!

I used to tape the bands that I "sat in with", spend a week, learning what they needed, or, were missing, and filled in like that, intelligently. Which, made me always welcomed.
Of course, that's not to say I didn't have some embarrassing moments..... Hah!
But, that's part of the fun.

Yes, I agree, MG. MUSIC is my favorite release!
Do you play?
Does anyone here, play?
Anything?

Hey, I'm a polish boy, so naturally, I started on the Accordion! Got that with my bottle and blanket!

Oh well.
I hope we have more musical members here.

Tell us what you play.
If not, tell us what you listen to!?

(I started with the Beatles, and listen to Frank Sinatra) Good Music, is good music. I also have a thing for NOLA music! too! (New Orleans).

pete

[SandyS]

When my daughter is having a bad day, she always listens to music, when she was in the Childrens Pain Rehabilitation at the Cleveland Clinic, they had music therapy...This seems to help her more than anything when she is in a bad flare...you guys are onto something! Keep smiling and singing guys.

Sandy



QUOTE=mellowguy;587930]To everyone who suffers with this horrible and debilitating disease, sometimes the most simple pleasures we have available to us can relieve or even lessen the pain and suffering we go through. One of these pleasures I have found to work for me is a plate or bowl of comfort food and your favorite music listened in a soft tone. Any music that soothes the soul is better then listening to nothing except our own misery that comes about with each agonizing pulse. For me..Listening to Pink Floyd brings comfort and helps to melt the icy grip that blankets my mood. Your mood can reflect the amount of self pity and can be corrected by ones own simple act of pleasing yourself. Have a pain free day/night. Keep safe all.[/QUOTE]

[bassman]

Originally Posted by AintSoBad

Does anyone here, play?
Anything?

I hope we have more musical members here.

Tell us what you play.

As my screen name suggests, I play bass guitar and I sing with a bass voice. I have been in bands (generally top 40 stuff, but others, too) since the 60's. I always enjoyed getting up before a huge crowd and getting the party going.

As I got older, I also found gigs playing in the pit for musical theater. I had more than one person comment that it was unusual to see a bass player who could read music.

Now that my hands and shoulders have gotten so bad, I can no longer play the guitar. That really gets me down at times. Shortly before I reached the point where I had to give it up, I bought a beautiful new Fender. It is just collecting dust now, like my vintage Gibson.

Now, I am still able to participate in making music by singing with a community chorus. I sing Bass II (the lowest parts) in a group of about 80 voices. This is a highly polished choral group and we make beautiful sounds together.

Mike

[Imahotep]

I love music and find it often is beneficial or soothing to play a record or two. Unfortunately I'm sometimes to sensitive to the noise and it hurts instead. Usually decreasing the volume is good enough but not always. I've also always tended to prefer music with sad themes. The first song I ever liked was "As Tears Go By". So sometimes the music I'd like to play will be too much of a downer. I just play Moody Blues when this is the only problem.

Yes, music is great. Anything that helps is the way to go. I do much better if I'm talking to someone so it's important to me to get out and talk. (I hate phones and they cause me pain). Get a hobby or or pick up crafts. Learn your triggers and avoid them. Try to stay up.

It's pretty easy to feel sorry for yourself and think about what your life "should" be like but these seem to be associated with the pain and and worsening of the condition.

I always used to try to take the hardest road just for the sport of it. ...No longer.

[ouchymama]

To Mellowguy,
I can relate to your post. I love music and have really rediscovered it as part of pain relief. I scream out it out with Janis Joplin, Tina Turner, Bruce S., you name it. Or i put on opera and cry. Or good country music or blues........I love all music. Both my kids got into music for their jobs and my daughter is a music therapist. She often will sing and play guitar...or just the guitar when I want to sleep. She is great. I forgot how much I love music and it does SO HELP!!!

[AintSoBad]

For those interested,
got to
pbs.com or, pbs.org,
they have for a couple more days,
last weekends show of John Fogerty!
Happy music.
Good show.

All by request.

I hope, I encourage Ya'll to check it out!


pete

[Cake]

I retreat to music, too, during flareups. I have a lot of music saved on my mobile phone (it has 2gig for music and I've almost filled it with songs) so I put my earphones in and soak it up. I find it a great distraction from the pain as I focus on the music going into my head. If music is played on a normal stereo in the house, I can't have it too loud as the vibrations drive me nuts, but through the earphones it's ok. I have a huge range of songs- sometimes something like Simple Plan helps me deal with the pain (especially their Save Me song) other times it's more mellow stuff like John Mayer.

I also have a lot of stand up comedy on my phone. Laughter is a great pain reliever so some days I go into my room and listen to that.

I used to play keyboard in a band and played in front of hundreds of people each week (and often thousands at big events) so I really miss playing, but often I can close my eyes and my fingers know exactly how to move to play what I'm listening to. I've done this a lot during ketamine infusions- lying in a darkened room, awake and my brain tripping a tiny bit, I could pick out every instrument in every song, tell them when to come in and play with my fingers exactly what the keyboard guy is doing! I was a very accomplished conductor in my tripped out, ketamine-soaked brain, lol. I just had to make sure no one saw me or they'd push my hospital bed over to the nuthouse!

Flare ups and high pain levels are so much harder to deal with when you don't have a distraction, as your brain and your mind just focuses on how much pain you're in. So if you can distract your brain by bombarding it with music or listening to something you enjoy, it's easier to get through the tough times.

x Kate

[allentgamer]

In my family everyone played several instruments, and there were many nights I fell asleep under the feet of my grandmother while she played the organ. At an early age I picked up the guitar, but my favorite was the accordion. Nuthin like a polka to liven up the party eh Pete!

I love music, but now that the hearing is almost gone and the vibrations make pain, it is isnt an option for the distraction of pain like it used to be for me. I agree with everyone here, distraction works wonders with pain. It is when the day is over and everything is quiet, thats when the pain becomes the focal point.

Thank god for computers!

You all should pick a song then record yourselves playing on video. Edit all together like you all are playing together....The RSD band!

We can plaster it all over youtube! LOL

[loretta]

Originally Posted by AintSoBad

For those interested,
got to
pbs.com or, pbs.org,
they have for a couple more days,
last weekends show of John Fogerty!
Happy music.
Good show.

All by request.

I hope, I encourage Ya'll to check it out!


pete

Thanks Pete, I love music too. I watch a lot of the pbs specials on tv here in Phoenix-channel 8 so soothing and happy times. Thanks again for the internet site. Take care. loretta