hi artist...last post i get to reply to tonight..steve comes home and the computer is his till at least 5 am. just hope i can sleep tonite can't seem to find my blindfolds.... i will bring article into dr visit tomorrow (neuro) she doesn't decide on most of my treatment but i will get her opinion too... they are really reluctant to to any further surgery on me....the consesus of all drs is that further surgery will injure me more...they say more soft tissue damage may be done..and the probalabity is high that it will...my dr has been up late for 13 yrs trying to come up with something that might benefit me...says my chances are not good...but then one day i might wake up and it will be POOF gone!!!! wishful thinking on all our parts but i am trying to be optomistic (for now -tonight- anyway)
thanks for your help and i will try to send an update tomorrow...peace to all***** linda

Good luck tomorrow - now get off the computer and get some rest!!
night night (it's lunchtime tomorrow, here! )

took a few days for me to get my stuff together after seeing the neuro. the appt was a complete waste of time...they have nothing to really do or say to me..appt was just for getting refills of meds.. brought in the articles that i copied from the site and the dr didn't have much to say... one good thing was she gave me more free samples of the provigil...i take 100 mgs in am and then another 100 in the afternoon...seems to be helping some..was told it may take some time to get the full benefit from it...been feeling very defeated lately..i am going to go to the support group that debbie reccommended...i am going to go back to work on the 21. can't stay home any longer..messing with my depression too much...the drs don't want me to go but i know i have to for as long as i can..until i know that i can't...i am fighting it cuz to me it is letting this disease beat me and giving up..i know rationally that i have little choice in the matter...what happens is what happens..doesn't make me weak..cuz i am trying so hard to keep it together..just don't want to do more damage to myself for being stubborn and hard-headed... anyway ....no more drs for a few weeks..need a break!!! thank again for caring...linda

Hey Linda,

Sorry to hear your appt didnt go as you wanted it to. My hubbies was the same way last time - It was like talking to a brick wall. The ONE saving grace is that he is only 1 of 5 Dr's he has - This one is the one who originally diagnosed hubby with nerve damage so we just need to see him for med updates and so he can "keep up" with him. Two of his other Dr's (they work as a team) diagnosed him with the RSD. They are in charge of his treatment there and we are talking with them in a week or so...Hubby also has had contact with him and he knows we're looking at some med changes. Maybe that patch??? And starting of blocks?? We're not sure yet but will know soon.

I hear ya when you mention work - It is driving hubby nuts not working - He tries so hard to get things done around the house but there is so much he cant do. He also cant drive due to this being in his arm and the meds he's on so that shoots work completely. He decided to do some volunteer work on Wednesdays. I'm available to drive him for that - It will get him out of the house and feeling useful again. I understand your feelings on that - You need to have a purpose and to feel needed and plain just have something to do. I'm betting going back will more then help your depression.

Hang in there girl, We're here for ya

Hi Linda,

Oh, how disappointing about the doc appt...how are you coping this week? You OK?
Just wondering,

all the best

hi artist..thanks for asking about me..this week has been awful...don't remember wed. at all..was in deep,deep sleep..slept from 9am-10pm..without waking.woke up at 10pm with face numb and just out of it..fell 2x's on way to bathroom and then went back to sleep again. thurs. got brother on bus at 9am and went back to sleep this time only till 4pm..felt some dizziness but otherwise ok(just usual pain +8)..went to ent today and they have no answers only more ????'s .they are going to seet me up with a sleep study test..see what that shows.. stayed up today till 7pm then slept till 10pm. needless to say i can't go back to work yet..hoopefully 1 more week..need to get back to work..have a mortgage to pay and need a routine to ttry to stick with..very depressed in alot of physical and mental pain...hope tomorrow is a better day..for us all thanks for being such caring and understanding friends ..trying to cpe the best i can --moonstar