Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-01-2010, 12:10 AM #21
bobber bobber is offline
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Sarah
Ive Rsd about 1yr now, as the disease progresses one symptom during the duration was sweating,,I dont sweat too bad over my affected limbs , but id do under the arms,exspecilly if im worried, and when i do sweat [underarm] it comes with a bad odor,,really bad,, im in pretty good shape,before my accident that caused this mess, I was an active sponsored ball player. Now ive got it in both hips,,its heart wrenching not being able to play anymore,but that is Gods will for now and i must accept this. Any way about the sweating, when i played ball or was working construction,I sweated alot, but there wasnt any smell,just sweat,,Now with RSD stinch underarm comes with the sweat,and as others have commented,Its ussually when im really worried[then i sweat like a pig and fast,it immediate] and its also a precursor to a bad flare,,,,I do know that rsd does effect the vasamotors[sweating]and submotor[circulation]. Oh by the way , I do have RSD 2[causalgia-nerve entrapment] which makes everything with me excell with the disease. And I have ruled out that it was the pain meds,,i like others,switched them around and nothing help, but my most incriminating evidence that it is the rsd,,is Ive on 4 occasions have gone completly[like now] off all meds,,not even a asprin,,and I sweat just the same,,,,,,,,,much luck and hope ,peace to you all,,,,,,,,,,,,,bobber
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loretta (01-02-2010)
Old 01-01-2010, 08:50 AM #22
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Ooo Thxs!!

Quote:
Originally Posted by bobber View Post
Sarah
Ive Rsd about 1yr now, as the disease progresses one symptom during the duration was sweating,,I dont sweat too bad over my affected limbs , but id do under the arms,exspecilly if im worried, and when i do sweat [underarm] it comes with a bad odor,,really bad,, im in pretty good shape,before my accident that caused this mess, I was an active sponsored ball player. Now ive got it in both hips,,its heart wrenching not being able to play anymore,but that is Gods will for now and i must accept this. Any way about the sweating, when i played ball or was working construction,I sweated alot, but there wasnt any smell,just sweat,,Now with RSD stinch underarm comes with the sweat,and as others have commented,Its ussually when im really worried[then i sweat like a pig and fast,it immediate] and its also a precursor to a bad flare,,,,I do know that rsd does effect the vasamotors[sweating]and submotor[circulation]. Oh by the way , I do have RSD 2[causalgia-nerve entrapment] which makes everything with me excell with the disease. And I have ruled out that it was the pain meds,,i like others,switched them around and nothing help, but my most incriminating evidence that it is the rsd,,is Ive on 4 occasions have gone completly[like now] off all meds,,not even a asprin,,and I sweat just the same,,,,,,,,,much luck and hope ,peace to you all,,,,,,,,,,,,,bobber
bobber...

Happy New Year! and that you I just learned something..This goe back to my question a few threads ago...So when we are having a "progression" a flare during these times we experience these uncontrollable sweating episodes??? Did I understand you correctly???

Thxs...KS
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Old 01-02-2010, 01:42 AM #23
Swatgen27 Swatgen27 is offline
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Bobber,

I just wanted to thank you for sharing and also let you know that I really relate to the having my active life style disrupted. I used to be very active with sports, hiking, water sports, rock climbing, skiing, bike riding, and horseback riding all before the RSD and now on a good day my physical stamina is only 25% of what it used to be. I still work on my muscles but I have to do low impact and a specialized exercise program and the limited exercises are not nearly the fun of what I use to do exercise. If you don’t mind me asking, how old are you? I'm 27 so for me personally, accepting my physical limitations has been one of the hardest challenges with the RSD. In fact, as far as the limitation acceptance I still find myself going through a constant roller coaster of emotions, like one week I will go into denial again and overdo it and then because of over doing it I get really sore and then I get angry. Like I said this has been one of the hardest parts for me.
As for the sweating issue that I have experienced, I get it all around my hair line but at night it’s like a full body sweat. I also go on and off my pain meds because of the tolerance issue and during this past month I adjusted the meds to see if it would make a difference and none.
Something that you brought up that I found really interesting was the part of the sweats signifying a flare. I will definitely keep a running track to see if that happens with me but really not sure at this point because the episodes just seem so random.
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loretta (01-02-2010)
Old 01-02-2010, 09:55 PM #24
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Quote:
Originally Posted by Cake View Post
Hi Guys

As with so many aspects of RSD, it's reassuring to know I'm not the only one dealing with this symptom, but I wish no one else had to deal with it at all. And weirdly enough, I just opened Neurotalk to chat about this exact problem!

My sweating issue is out of control. For me, it mainly affects my face, head, neck and upper body. It can happen at any time. We're in the middle of a hot Australian summer at the moment but in a way that's irrelevant as I get just as sweater when it's cold and the house is cold, than I do when it's hot.

My body temperature regulator has also gone out of control in the past few months (I'm always sweating when everyone else is cold, and vice versa), and my fingernails on my RSD hand have also changed- breaking constantly (often with the top layer of the nail breaking, not always all the way through), vertical ridges down my nails, etc etc.

It seems that after I hit my 9 year RSD anniversary in November this year, my body/rsd has decided to step it up and notch and take me into a whole new phase of my RSD progression. I've always been kinda relieved when I've read other RSDers talk about their sweating symptoms that I didn't have that to worry about. Now that's all changed

The sweating issue has made me so cranky at my body. I can't put on make-up or do my hair without having to do it a zillion times. As soon as I apply my foundation, I sweat it off.

Although I have one daughter with ringlets and two with dead straight hair, my hair is in the middle- with some parts going wavy, some straight and all of it frizzy and boofy, lol. But if I try to dry my hair with the hairdryer, I have to have a hand towel next to me to wipe the sweat from my face, hairline and neck as I go, so I may as well not bother or get in the shower again!

If I'm going out, I use a straightener for my hair but as soon as my hair is straight, I start sweating again and then my hair frizzes up all curly and looks crazy!

I'm SO over the sweating!

I'll ask this here but I might also start a spin-off thread so more people can answer, but can anyone recommend a good foundation (liquid or powder) that can handle a bit of sweat and not come off as soon as you put it on?

I know this all sounds really vain and it's a small problem I have in the big scheme of things, but I'm in my early thirties and my medications give me really bad skin as it is, so I just want to look nice and feel good about how I look, even if my body is far from normal in other ways... that's not too much to ask, is it?!

I've just bought a small hand-held fan (as I'm always having to wave a magazine/piece of paper in front of my face to cool me off) and that's helping, but has anyone got any other tips for dealing with the chronic sweating?

And if anyone could recommend a good foundation that stays on well I would really appreciate it, I don't mind how much it costs- I'm spending a fortune on foundation now because I have to keep re-applying it all day!

x Kate
Hi Kate, I know the sweating is awful isn't it. I live in Phoenix, Arizona- where it gets 110 and higher in the summer. But of course, we sweat in the winter too. I use a liquid make up-Chanel teint innocence and what really helps when I'm sweating is a thin blue paper product by Shieldo You just put the thin paper on your forehead, nose, etc and it absorbs the sweat and doesn't take t he make-up off. I also like to use loose powder with a brush after putting the make up on. It kinda sets it.
Drinking lots of cool water is good. I also use a cool wash cloth on my wrists, back of neck and forhead. I wear my air in a pony tail and feel that helps more than having my hair down on my neck.
Do you have extreme heat too in the summer.? I don't know what part of Australia you live in. My daughter and I are huge tennis fans and always watch the Australian Open in January. I used to read a lot on the Austrialian RSD website.
I hope one of the suggestions is helpful for your make up issue. Take care, I always enjoy reading your posts and blog. Your friend, loretta with soft hugs
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