Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-29-2009, 04:32 PM #4
loretta loretta is offline
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Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Quote:
Originally Posted by Jenna Delaney View Post
So...Im new on here.. Im 25 and I had bunion surgery in April 09 on my left foot only and now was just diagnosed with RSD I have had hives head to toe blisters on my hands and feet a few on my arms legs chest butt and tummy now i only have them on my feet??? Anyone else have this???? They are like little water blisters...
Hi Jenna and welcome to neurotalk> I'm sorry you are 'here' for this reason. But it's good to have support from caring friends, that truly understand this disorder.
I've had hives from seafood reaction and I've had 'lesions' from RSD flare and they are two different things. Did you have a Dr. diagnose hives? I've ha the RSD lesions-blisters filled with clear liquid. They are awful and take a long time to go away. Be really careful that they don't get infected. My RSD Doc had me sit in warm water many times a day and pat them dry. The warm water draws the infections to the service.
I'm so sorry you have this. It's really important to get treatment early.Do you have a RSD specialist? RSDSA is the national organization for RSD. The website is very good. You can put in your zip code and find the closest support group meeting or Dr. You have a shot at remission early on and that lessens the longer you have RSD. It sounds like a flare to me. This disorder is something that is imperative to fight early on.
Do you have any limbs that are freezing up? Physical Therapy and desensitization are two things very important to keep mobile. Massage therapy is something that helped me. Both pt and mass. therapy were torture.
A tens units is somethings that helped me. I wasn't diagnosed for 4 years, but started p.t. and m.t. from the beginning. Got rsd right after surgery. I thankful to be mobile. Have one hand that is partially paralyzed-frozen. It's been 15 years now.
You'll find kind, compassionate friends here. And a wealth of knowledge that help you get thru this. Another website that is so helpful is rsd.rx.com and under puzzles (really 146 questions with answers) from Dr. Hooshmand of Florida, is very good. He is retired now, but still has website up. There are some excellent Drs. in the country, that would be worth getting into if you can travel there. The cleveland clinic and Philadelphia have great Drs. My dr. just built two clinics that I'm going try HBOT for help in circulation. I think it's worth a try-some have found success, but need continued treatment.
Please stay with us and read read read. You'll find coping skills and comfort while you are reaching for remission. I went into remission twice for at least a year each time. A local support group can be very encouraging. stay positive and active. You may not play tennis, but you can stretch and water therapy with 86 degree water is excellent. Stay away from ice. water therapy-ymca, local gym, etc is low cost and you can go at your own pace.
Take care, loretta, with soft hugs
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"Thanks for this!" says:
Jenna Delaney (10-02-2010)
 


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