Hi mom,
I am also a mom with a daughter with RSD, she is 16 years old now...She has had RSD for many years but was misdiagnosed for many. Have you tried any of the Childrens pain rehab programs. Like the ones at the Cleveland Clinic, or the Childrens hospital of philadelphia, or the one at Bostons' childrens hospital? They are great programs that teach children how to manage pain in a holistic approach. My daughter went to the Cleveland clinic two times. I highly recommend these programs before you try any surgeries.
Also, I am with Loretta, do not use anything on your child without a doctors recommendation. Take the tens unit with you to your visit. If you do it wrong you could cause her so much more pain. Good luck with your visit and I wish you much luck, my prayers are with you.
Sandy
Quote:
Originally Posted by momw/rsdchild
Hello!
My 15 year old daughter has RSD/CRPS. She was diagnosed 3 years ago at the age of 12. It is in her left leg. She is in a bad flare up right now. We just moved to Oklahoma from Texas and I am wondering if anyone has a good doc they can recommend in OK. TX is so far to go when she is in such intense pain. She has an amazing pediatric pain management doc at Children's Hospital in Dallas but it is so far to drive when she is in such pain. We are going down tomorrow to try to get her some immediate help but we will need someone in-state soon.
I have also read that some people have had good results with TENS units. I have one that I use for pelvic pain issues that I thought I could try with her if I knew where to put the leads. I don't know if I should put them on her leg where the pain is or on her low back where those nerves begin. Anyone with info or experience on this - your advice would be appreciated. It just worries me to stick those leads on her right where she hurts so bad.
Just hoping to get some support for her and myself as her mom.
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01-18-2010, 01:56 PM
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