Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-21-2010, 02:05 AM #1
Kakimbo Kakimbo is offline
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Please smile for us...it is SO beautiful! You are truly an inspiration and a warm friend...We miss you!
Kim
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Old 02-02-2010, 09:01 PM #2
Courtw84 Courtw84 is offline
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I think its a hard thing. No one really understands it. I don't even quite think my boyfriend on 2 years understands totally. He act's like he does, but sometimes I think he gets tired of me hurting, and/or talking about it!!! It is really hard being a young girl who can't stay out as long, and can't handle as much as my friends!! It's really hard!!!! I really don't think there is anything else to do, but pray and hope that people understand. But I don't tell people. VERY few people know! I think its best that way. People know I hurt, but not really what I "HAVE"
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Old 02-02-2010, 11:28 PM #3
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Quote:
Originally Posted by vannafeelbettr View Post
Sadly, what happens is the relate-ability factor that you two once shared together has changed, and that may inevitably cause distance to grow between you both. Her daily life and your daily life are so different, your life's perception is altogether different. The real difference is, you can relate to her life, because you once HAD that life yourself....so you "get" her. She, on the other hand, cannot relate to your daily life (even though you tell her, she still can't truly imagine)..... which may unconsciously make her feel uncomfortable. She doesn't "get" you. Make sense?

Nonetheless, she could simply be going through a busy time in her life, and you may be taking her distance too personally (you are probably very emotional right now with the big, recent changes in your own life). Perhaps she is exhausted, depressed herself, or really is avoiding you because she may feel guilty because she still has her health and career and feels she doesn't want to be a reminder of the person to you of the person you used to be. Give a little time, and write her a letter (as suggested by the person preceeding me). From my own experiences, I have also lost good friends..... a lot of it is due to strained finances. With not working (and medical bills out the wazoo), nobody is calling to invite me to do anything or go anywhere because 1.) they know I can't afford it and 2.) I may be having a bad "pain" day and cannot do all the walking involved.

Good luck and hang in there. Hopefully you will get the answers you need soon

Vanna
You are exactly right...some of my friends are sympathetic, but if I am out without my cane they are, "Wow, you're better!" ...no it's just that the pain is not as bad today and I want to look "normal"
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Old 02-03-2010, 08:52 AM #4
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Quote:
Originally Posted by cindi1965 View Post
You are exactly right...some of my friends are sympathetic, but if I am out without my cane they are, "Wow, you're better!" ...no it's just that the pain is not as bad today and I want to look "normal"
Even for my RSD smushed up brain I can make sense of this...Funny, how I expect my family and friends, my best friend to make sense of this crazy RSD rollercoaster ride we are on when we can't even make heads or tails about it ourselves.... it messes with our lives, or minds our physical bodies on and on..and it never stays the same as in progression...my... even look at what hours we are all up in typing out threads/posts... we can't even sleep.. gracious.. but one thing I know for sure is RSD can not touch... that is what is in my heart..the love for the people in my life and my zest and desire to live the best I can each day and allow tomorrow to slide (as who are we to desifer that?)...... I will always hold that in my heart... it's mine for the keeping.. it crushes me what a mess RSD makes of our lives let alone the lives of those we care about.. including all of you here... I am so lucky to have you all here.. and I care about you all in that you are having a nice day...today and tomorrow..and there forward!!!

Hugz, KS
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