Has anyone heard of a connection between RSD and hearing loss or does anyone have both of them? My daughter who is only 12 is experiencing both at the same time. It is very hard on her. Any help would be appreciated.
Thanks,
A hurting Mom

I am 20 and have RSD, and notice that some days i just cant hear things.. I have no idea why. It is frustrating.. she isnt alone. How long has she had RSD and where is it?

hi Mom....

So sorry your daughter and you are going thru this..I can tell you I had undiagnosised ear pain and hearing loss ~ 2 yrs. prior until my RSD really kicked my ****.. in my rt. leg... so I it is lee-git...Please seek out an RSD professioanl..present this to him as a chief complaint..as I never aquainted the two with mine until years later...

Best wishes..please..keep us posted and let us know how else we can help....

KS

I had hearing problems before RSD. I had a new eardrum put in my right ear when I was 19. It got much worse after RSD. My eyesight is worse too.

I would suggest seeing a ear specialist also to see if something else might be going on.

Another thing that drives me nuts is my sensitivity to smells. I can't cook food in my crock pot at night due to the smell of the food seeming multiplied. I cook in the daytime so I can get away from the smells.

As far as noise too, it seems multiplied at times even though my right hearing is gone.

I actually don't know if RSD is what causes all of these things but it just seems like we develop a lot more problems with it besides the pain.

Ada

Ada,

Your eyesight got worse too? My glasses dont cut it anymore... I know for sure driving at night i needed to get stronger glasses. Its the little things nobody tells you!!! A new eardrum? Why and how did they do that?

My hearing loss was never linked directly to my RSD but related to the medications given to me for RSD.

Is your daughter experiencing ringing in the ears, if so it could be medication related. Many of the meds we are given for RSD can do that.

What meds is your daughter on? Did you discuss this with her doctor. You might want to get her into see a good doctor of Otology & Neurology. Mine gave me a short course of steroids to try to stop any further damage.

I'm sorry your daughter is going through this and wish that she gets better quickly.

MsL

When I was growing up I had so many ear infections it rotted my eardrum out.
They took a piece of vein from the back of my ear and put it in for the eardrum. This was back in 70 though. It didn't heal right. I went to Denver about 5 years ago and they said due to scar tissue and dead nerves it couldn't be redone. My right hearing is gone.

As far as glasses, I am thinking of going to get my eyes checked but my problem is I can't see close up and I can't see far off so I'm thinking glasses won't do me any good. I do wear glasses to read books and things. Bill use to ask me what street we were turning on and I couldn't tell until I got right up on them. They have up some pretty big street signs anymore.

I was also told that there is what they call Fibroeyes also. I have a friend that wears glasses and she went to have hers checked again and they said they couldn't help her due to the Fibromyalgia causing the problem.

My thought would be if you have good insurance to have her hearing and eyes checked by the right Drs. and if they give her a good bill of health then you can go from there.

Ada

[QUOTE=dreambeliever128;613075]When I was growing up I had so many ear infections it rotted my eardrum out.
They took a piece of vein from the back of my ear and put it in for the eardrum. This was back in 70 though. It didn't heal right. I went to Denver about 5 years ago and they said due to scar tissue and dead nerves it couldn't be redone. My right hearing is gone.

As far as glasses, I am thinking of going to get my eyes checked but my problem is I can't see close up and I can't see far off so I'm thinking glasses won't do me any good. I do wear glasses to read books and things. Bill use to ask me what street we were turning on and I couldn't tell until I got right up on them. They have up some pretty big street signs anymore.

I was also told that there is what they call Fibroeyes also. I have a friend that wears glasses and she went to have hers checked again and they said they couldn't help her due to the Fibromyalgia causing the problem.

My thought would be if you have good insurance to have her hearing and eyes checked by the right Drs. and if they give her a good bill of health then you can go from there.

Ada[/QUOTE

I think back it seems the big picture is a bit more clear now.. but along with my hearing trouble in my left ear.. I also began waking up with these super humungis size throwup headaches... so bad that I could not lay down... so I would prop myself upo and drink acffine and take mgraine meds until it passed..This still happens from time to time now..You are right in that RSD lurks around every corner..even corners that we are not aware of..I am convinced.

Have a restful sleep everyone....... KS

Hi Mom and Daughter, I haven't noticed hearing loss, but my internist said I had ear infection. I also get like little sore blemishes inside my ears. I have RSD full body and internally. Starting to get some problems with eyes. Also have half my face numb-have trigeminal nerve disorder diagnosed by my neurologist. It's a very painful area at the temple.
I'm so sorry your daughter has RSD. This is a wonderful group that always try to help in anyway we can. I've had it 15 years following benign breast tumor removal. Wasn't diagnosed for 4 years. But started physical therapy right away to fix frozen shoulder. For me, massage therapy also was not fun, but helpful. Swimming -water 86 degrees. was one of the best things to keep me mobile. Of course, you want to check the ear out before water exercise.
Desensitization is very important in the long run, but not fun. I had RSD in my left hand, and my physical therapist had me exercise at home dailey. Took several plastic bowls. Put cotton balls in one, sugar in another, coffee grounds, rice, beans, just different textures. By running your hands or feet thru the bowls, it desensitizes , which is important when it comes to using your hands, dressing, showers, etc.
Please let us know what we can do. Do you have a great RSD Dr.? There is a website with a lot of good information. It's rsdrx.com Dr. Hooshmand is retired now, but information is good. Under puzzles, there are 147 questions
with the Drs. answers.
RSDSA is the national organization for RSD and if you put in your zip code, you can get references to local support group and even Drs. names.
Please know we are here for you both. your friend, loretta with soft hugs I'm a Mom to one daughter 30 and one son in law. I'm grateful for their support and my husband and all the good friends here and my closest friends where I live, which is Arizona

Hi Ada, I just want to say I can't stand a lot of food smells of things I used to love. In fact, I'm vegetarian now, which seems strange, but and smell -taste thing is something I can't control. I will eat a few bites of salmon and scallops, but that's it. You'd think I would be skinny, but the meds put weight on me like everyone else. I am going to try and take it off and get more physically active.
My mother in law lost her sense of taste after having menengitis.
Take care, your friend with soft hugs , loretta