Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-01-2010, 01:38 PM #16
daniella daniella is offline
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daniella daniella is offline
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Join Date: May 2007
Posts: 2,998
15 yr Member
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Hi. First I am sorry but can relate cause over the 3 years of this I have seen so many docs with so much frustration I can't even tell you. A few thoughts I have. EVeryone is different but for myself and again you have to look at what you for yourself feels is best but there is no way I would get a shot in my rsd area. I don't even let any of my docs touch my leg. All the ones who deal with RSD are acceptable to this. I had a lumbar block which increased my pain and why my pain doc did not want to do the scs. I still have rsd though. Some of these dx tests are not accurate in diagnosing rsd and you also don't have to have all the symptoms. I have traveled to many docs who have been considered to be one of the best and turned out not to be. I understand how hard it is to keep to hope and to keep searching for someone to help you but somehow you have to keep going. I hope you have family support cause that has helped me. I am not sure if she went for treatment there because she is a teen but I thought I have heard rush hospital in Chicago deals with rsd. I encourage you to call the major hospitals in your area in their pain management/anestesolgist dept and explain your condition and ask if they have a pain doc who treats that a lot. You know I traveled to see Dr Stanton Hicks and to California but my best pain doc was one I found by calling a major hospital in my area. Lastly I know you are trying to hold in the emotion but it is ok to feel and cry. Sometimes one needs a good cry to let it out. Hang in there.
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