....please help me through this day even if I have immense pain, help my loved ones understand that I can't jump up at a moments notice to help them with their homework or clean and cook like I used to, give them the patience to understand that I am not the same mom or wife I was 2 years ago. Please give me a few moments of relief after the kids go to school. Also, I thank you for this place in RSD Land where I can go where everyone understands me and can feel the same stress that I have. I pray to you that you give them relief and happy thoughts even when they are in pain, depression, heartache and sadness. Please let them know that I pray for them everyday and even though we have never met face to face, they are the dearest people I know. They are all in my thoughts with every test, appt, and med change. I thank you for everything that I have and that you have graced me with...Amen<3

That's beautiful Cindi.

Better than any medicine in a bottle, that's for sure.

Thank you
Rae

Amen. The Lord is what gets me up and through my day everyday. I thank him everyday too, and understand the pain you are going through! Hang in there and take a deep breath and take a warm bath

"Is any of you in trouble ? he should Pray,,any one sick he should call upon the elders of the church[We are the church} tp pray over them, and the prayer offered in Faith will make the sick person well ;the Lord will raise him up [heal him]. the prayer of a rightous man is powerfull and effective,{James 5;13-16]
"when we ask, we must believe and not doubt, the man should not think that he will recieve anything from the lord , he is double-minded ,unstable in all he does James 1:2-8
faith is a powerfull tool,,,,Thank you for the prayer cindi,,,may The lord in whom i fear and serve,bless you ,heal you ,and give your family understanding to what your going thru,,May he also ,heal all on this board,,,,,,much love to evryone here,,,,,,,bobber

Once again this thread proves that we have our wonderful, caring friends on this forum...

I, thank you, Cindi for your wonderful words of prayer...I accept each word you said and hold them dear... The determination and will to see ourselves thru one more day, everyday is only part of what it takes for us to walk on.... we must hold faith in our hearts and believe.... I am with you, Bobber in that I send much love to everyone here....

KS

I needed this today...Thank you

OMG! As I read this I thought wow, you took the thoughts and words right out of my mouth. I try to make my family understand I am not the mom I was a yr and a half ago. I am so grateful I have this group, even though I don't post much. Lately my hands just don't like to type (RSD left hand and arm, right hand and arm been sore and stiff lately-God I pray it isn't spreading). Thank you for this!

Dear Bobber, I am new to the forum, but not to the illness, nor to God's Word, and it is stated that where there are two or more of us gathered in his name he will....so far there are about eight of us here, If I might say...I would nominate you to lead us in a daily prayer. God uses us in mysterious ways. Just a suggestion. God Bless You!!

Jeanie

Hi stressedout, Those were words of compassion and understanding. It doesn't feel good to be totally understood doesn't it.
I'm sorry you are having some progressive symptoms. Have you checked with your orthopedic hand Dr.? When I started getting feelings of RSD in my right hand, I got started right away in therapy. Physical therapy and massagae therapy. I also did hand therapy 7 days a week at home. I took several plastic bowls and put cotton balls in one, rice in another, coffee grounds in another, sugar, beans, popcorn kernels, Then run fingers, hands thru. Also a small ball between the size of a golf ball and baseball. It feels like a gummy bear ball. It's good tool to keep limb from freezing up.
I have full body RSD and am completely mobile, except left hand-delay in diagnosis and so delay of therapy. Also water therapy is good-water needs to be 86 degrees.
No We aren't the same physically, emotionally, but we can be better in compassion, understanding, an encouragement to others, including our family.
It's difficult to communicate when someone is mad at us because we aren't available to them like we were before. There is a book that helped me express myself in a better way, and also helped me to be able to 'hear' what another person was trying to say. It's a paperback called Life-Skills for Adult Children by Janet Woititz and Alan Garner $8.95
Back to your hand, one of the best ways to keep mobile-keep from freezing up, is to do water therapy. Swimmining, My Toes started curling up and my Dr. got me into water therapy, actually told me what to do in our pool. After 4 months my toes were touching the floor again. Do you have a tens Unit? The Dr. who diagnosed me, order one for my hand. It was frozen flat and he ordered physicall therapy and tens unit. I also did the different bowls at home. and massagea therapy. I'm so grateful I'm mobile. It also desensitizes you, which is very important to be able to stand clothing, being touched etc.
I hope this helps. Your friend, loretta with soft hugs

Dear Wilbyfree
The mediators get complaints about me from time to time about mentioning the lord or scripture,,I do not want to offend anyone ,but I will not bend on my faith,,I do pray for people on this board and my words are sincere,,I know that neurotalk has a christian board, but maybe they wouldnt mind a thread for us pray and encourage one another,,and for those who would be offended, they could just not read that thread,,We all need to know the lord, before its to late,,fighting carnel ways and my own inclinations are a daily fight,I by no means am any better than anyone here. I wish all a remmission and less pain,,,,,,,,My heart does go out to all,,this is a terrible disease,,it to me is a type of cancer,,i see no difference,,its eating at me at an accerlating pace beings im in stage II ......Im sorry if ive offending anyone here,,my heart and thoughts and prayers go out to you all,,,,,bobber,,,,,,,, "Then those who feared the Lord talked with each other and the lord listenedand heard, A scroll of remembrace was written in his presence concerning those who feared the lord and honored his name,," They will be mine says the Almighty "in the day when I make up my treasured possession. I will spare them ,as a man spares his son who serves him. And you will again see the distinction between the righteous and the wicked, between those who serve god and those who do not," [ Malachi 3: 16-18 ]