I definitely have both. The hot is bad no doubt, but the cold is the worst for me. Nothing warms my foot up! No matter what I do, it remains cold to the very bone - like a frozen extremity that just refuses to thaw out. Drives me nuts!

Nope, not crazy...just RSD. At least two or three times a day, it feels as though my foot and leg are being blown up by a hot air balloon. To this day I still check to see if it is swollen, but it is not, quite the contrary it is purple, small and feels like ice. I have to administer heat to it instantly, sometimes I can actually stop a flare up if I get to it fast enough.

It is normal for me, however, you need to watch for trigger points for the cold extremity, the hot I do not worry so much about but the cold still concerns me.

And Welcome to neurotalk, this is a great group of people who share the same illess with many different ideas and support.

God Bless

Jeanie

yes! I feel the burning in my foot and leg but I can't tell when my foot or leg is cold only from the intense pain.

Yippee dang skippee.... It's KS here...

As best I can tell we must all look the same..as hot/ cold.. cold/then hot... after reading our posts... we validate eachother that is for sure!!! Oh weeee doggies..get us all in one room..what a great group we would make... That would be the best sight in a very long time..but we would be happy cuz we all have eachother to support..lend an ear and noone would feel like they were not being understood and felt compassion for their RSD as we are all the same..Would that not be the BEST????????? We would not invite anyone who was not lucky enough to have the same fruits of RSD!! Except those who have been a bit less compassionate and non sensitive to us all..to all of them I say...here take a sip from my RSD cup!!!!

Hugz everyone!! Kathy

Hi Geronimo and welcome to neurotalk. I'm sorry you have this disorder. I have both hot and cold rsd.The sympathetic nervous system controls temperature, circulation, immune system, involuntary organs like the heart, lungs, kidneys. The sympathetic nervous system can cause high blood pressure and the para sympathetic nervous system can cause low blood pressure, which if gets too low can pass out, which happened to me. We can be burning up or freezing cold. The skin can be pink to reddish blue -hot or ice cold. There is a website with a lot of information from a Florida Dr. He is retired, but has his website up It's rsd.rx Go to puzzles and there are 146 puzzles or questions and his answers.
RSD can also cause problems for internal organs. I've had this 15 years, full body or generalized now and internal organs. It can effect the eyes, ears, skin conditions, lesions, teeth,mouth. This website explains this and the hot and cold question you have.
Hope the best for you, your friend,, loretta

I have rsd in my arms and back and they are always HOT, but i notice that my feet are ALWAYS freezzzzing cold. Nothing warms them up... I tried an infarared sauna and while I am in there they begin to defrost after 30 mins, but by then I need to get out... So i am back to cold feet. If i lay on the couch with someone and my feet touch them they usually go eesh why are your feet sooo cold?!?!? and i dotn even have rsd in my feet!!!

Oh yes and what fun it isn"t gee welcome to the world and state of a body that is in a total stale of confusion But I have come to realize that if it was not for all these strange little cotraditons I would have a almost normal Life again.

yes I was crushed inbetween two high low 5and half months ago and in beging mine was hot red swellon and shinny, then turned cold purple/blue color and stayed that way for some time now the last 2 weeks back to the hot red and shinny and swellon, now today its cold and purple yes wondering the same thing what does this mean??

I can't remember if it was Jomar or not who mentioned the website http://www.rsds.org/2/library/articl...ive/index.html but on that site there is a very interesting article about warm/cold RSD under the "research" link.

I don't know if there is an official definition for flare. My thinking is that first there is the "norm" or what is normally happening. This is how you feel most of the time. For each of us it is different. When my meds are adjusted correctly, I run along at about a 5 or 6 on a pain scale of 10. I know what typical sensations to expect. That is my “norm.”

When I experience what I call a "flare" (short for flare-up, a term used by fire fighters when battling a building fire - you can picture what it means there) my pain level might jump to 9 or 10. I might get localized sharp pain like a harpoon or a dagger in my leg. Others might get a severe increase in temperature, which would correlate nicely with the firefighter’s terminology.

If you say your temp is all over constantly...you are either getting a LOT of flares or your doctors still have not found the right medication cocktail to help you get that steady 5 or 6 pain level like I have. In other words, you don’t have that nice, steady “norm” I was referring to. I really hope you could achieve that. It doesn't sound like too much fun, but it seems better than wild fluctuations!

I really wish you the best.

Gentle hug

Mike