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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-27-2011, 01:22 PM | #41 | ||
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10-27-2011, 02:22 PM | #42 | ||
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mnp, I viewed your video. Strangest damn thing I've ever seen. Very weird how when you touch the surface of the skin, it goes white. Mine STAYS red, no matter what you do. Except sometimes it gets redder if it's at all aggravated!
I too would explore all avenues so that you are sure you have the proper diagnosis. |
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"Thanks for this!" says: | mnp2011 (10-27-2011) |
10-27-2011, 02:37 PM | #43 | ||
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10-27-2011, 07:53 PM | #44 | ||
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mnp, you are a student of this game and that is what is needed to figure it out. As they say, "the devil is in the details".
Knowledge is power. That is the beauty of this forum; it increases our knowledge base. |
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10-29-2011, 10:28 AM | #45 | ||
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Lots of new details and hopefully some knowledge to add to the general base. Saw a pain specialist yesterday and he said it didn't look like CRPS per se. So I'm organising a bone scan (x-ray tracers injected into the blood and scanned for bone cell activity, from what I gather) to see if there is an infection and more blood tests. X-rays didn't show any obvious de-calcification or much visible damage. Seems like more of a sympathetic nervous reaction caused by something and triggered when I walk, run, cycle and by heat and alcohol.
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10-29-2011, 11:07 AM | #46 | |||
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If you're taking anything for thr RSD stay away from alcohol!
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Hope for better days..... Russ okska'sssini ómahkapi'si . |
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10-29-2011, 04:27 PM | #47 | ||
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10-30-2011, 02:10 PM | #48 | ||
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I saw your video and it looks to me like erythromelalgia (EM), especially since you said it flared up after a shower. The determining question is: are your symptoms relieved when you cool your feet off (by putting them in cool water or in front of a fan)? If the symptoms are triggered by heat and relieved by cold, then it is without a doubt EM. I have those exact same symptoms. I also have tarsal tunnel syndrome in both feet so getting a clear diagnosis has been difficult. One dr suspected CRPS and sent me to the pain mgmt clinic, but I don't believe it is CRPS. I don't have the constant severe pain of CRPS, but there is a lot of overlap with the other symptoms (color, temperature and skin changes). My feet also get colder than normal between EM flares. I've done hundreds of hours of research since this started in June, and to me it seems obvious that the cause is some sort of sympathetic nervous system dysfunction (this causes the vascular symptoms) as well as hyperactivity in the small C-fiber nerves (this lowers the threshold of heat perception). My drs are not familiar with EM so I am having to be my own detective.
Elisabeth |
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"Thanks for this!" says: | mnp2011 (10-31-2011) |
10-31-2011, 06:39 AM | #49 | ||
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The pain specialist I saw was talking about some kind of confused circulatory response linked to this sympathetic nervous system reaction. So really they just don't know right now for sure what's causing it. Hopefully I'll know more soon from these tests. Out of interest how are they treating your symptoms? I'm just getting off Amitriptylene (thankfully) as that didn't seem to do anything beside prolonging the flare-up time by around 10 minutes and making me drowsy. Thanks again. |
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10-31-2011, 06:42 AM | #50 | ||
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Also Elisabeth, what were your symptoms triggered by if anything? Mine started directly after invasive surgery in my toes.
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