Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-14-2010, 01:01 PM #2
daniella daniella is offline
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Join Date: May 2007
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daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
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Hi welcome and I am sorry about your dx. Like you before I was dx I was put in an airboot which made the condition worse. I also had a nerve block that increased my pain. I am also on neurontin and other meds. You are still at a low dose as sometimes 3200 or more is needed. I think overall this drug is ok and long term does not show any issues for most. My doc is very cautious about addiction and creating other problems since rsd is chronic. As for spreading some people do and some don't so try to stay in the day though this is very hard I know. We are all really different in terms of what happens and helps. I am glad your pain doc has knowledge of rsd. On terms of surgery that is a concern about your knee though that does not have rsd I would still consult your pain doc and make sure if you have to do it that your surgery doc is aware you have rsd.
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