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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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CRPS in only half my big toe!

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Old 10-25-2011, 05:38 PM #1
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I think that counts! **
In that case I'll chime in on your blog...
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Old 10-25-2011, 06:17 PM #2
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Jimbo, you're in! I really like the blog idea. We can all benefit from sharing information, symptoms, meds, therapies, etc!!
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Old 10-25-2011, 06:41 PM #3
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Jimbo, you're in! I really like the blog idea. We can all benefit from sharing information, symptoms, meds, therapies, etc!!
Anytime you want me to babble on let me know...
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Old 10-25-2011, 07:03 PM #4
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Hey Jimbo, isn't "babbling" a kind of therapy? I think it should be in that category. I am convinced that there is absolute value here!

I'm excited (and so are my toes) to find others with at least similar symptoms, affected area, etc.

That is the BEAUTY of this forum.
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Old 10-25-2011, 07:33 PM #5
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My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...
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"Thanks for this!" says:
birchlake (10-26-2011)
Old 10-26-2011, 03:29 AM #6
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My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...
Keeping a sense of humour is really important and I have to admit I've been struggling with that. I really kind of sunk in these past days how long-term this CRPS can be. I guess before I thought it would be something that would be easily fixed like a sprained ankle or something.

Still, got a few specialists to see so hopefully they'll come up with some bright ideas to sort it out a bit more.
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Old 10-26-2011, 03:31 AM #7
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My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...
Off for a (short) run this morning to record how quickly the toes flare up. I've been recording regularly various exercises (cycling, cross-trainer, walking etc) to see if the drugs are prolonging flare up times. I seem to be getting about 10 mins extra on this Amitriptylene 25mg.
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Old 10-26-2011, 06:09 AM #8
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Off for a (short) run this morning to record how quickly the toes flare up. I've been recording regularly various exercises (cycling, cross-trainer, walking etc) to see if the drugs are prolonging flare up times. I seem to be getting about 10 mins extra on this Amitriptylene 25mg.
Running is pretty much the same as cross-training ~15-20 mins before flare up.

When I was prescribed this Amitriptylene I as told to increase activity. I'm not sure if this was so that activity would 'reset' the sympathetic nervous system response; so that when I stop taking it, the nerves will have remembered the correct function?

What were your experiences like with this drug? I am very interested to hear as I will stop taking it this week.

**
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Old 01-06-2012, 11:46 AM #9
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I Have the same problem as yourself, would be good to get intouch.
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