[Kakimbo]

And i feel Great!

I recently got accepted at Johns Hopkins in Baltimore, but have not been seen yet. So, I had to drive three hours to see my current PM only to be seen for five minutes (for real!) and have him yell about how I am not improving and I am causing my legs to cripple. I have a torn hamstring (that his nurse diagnosed, not him.) Piriformis Syndrome, bursitis and an inch of atrophy in my RSD leg...not to mention the RSD. He made me walk, showed me how I walk (basically imitating me, but with a sour look on his face, his sholders slumped over and making me look like some freakshow)....Mocking me. I complain to him about my meds make me sick (went out for an expensive dinner for Valentine's Day -- took two bites and ran for the bathroom. Didn't make it!) So, I humiliated myself in public and didn't get to eat my forty dollar dinner! He won't prescribe anything for the nausea because my Neuro says that it gives me permanent twitches and tics. I begged. He FINALLY gave in.

I have tried to master each exercize i am given. Keep meticulous (sp?) records and I feel I am the perfect patient. What gives? Oh, plus we have over two feet of snow on the ground and more to come tonight.

I don't think many of our doctors have any clue what we live with. Just a little understanding and concern, please......OH, the absolute best part.....said he will take me off of all meds unless I start walking right!!!!!!!!!!!!!!!!!!!!!!!!!!! OMG! (can I say BIGGER flare!) I am mortified. Gee, thanks Doc! Not sending you a Christmast card this year!!!!!
Sorry to rant, just needed to get it off my chest.

Thanks everyone for listening!

Kim

[mellowguy]

its ok to rant...gives us something to think about besides our own misery. We also have tons of snow. we won't see grss untill May.
I wish I could fire mine. When he talks..I hear ..yadda yadda yadda. and I took latin for 5 yrs. Go figure. I know greek is similar but, come on. sheesh. He sure understands me when I have to pay the bill. Hope your feeling better today. Keep safe and happy. mellowguy

[Kakimbo]

MG.

I edited the post. Was so upset I forgot the best part! Threatened to cut off meds unless I start walking right!!!!

[keep smilin]

Originally Posted by mellowguy

its ok to rant...gives us something to think about besides our own misery. We also have tons of snow. we won't see grss untill May.
I wish I could fire mine. When he talks..I hear ..yadda yadda yadda. and I took latin for 5 yrs. Go figure. I know greek is similar but, come on. sheesh. He sure understands me when I have to pay the bill. Hope your feeling better today. Keep safe and happy. mellowguy

You did good, girl..What an idiot!!! He does not deserve your time..let alone be treating you..and accepting payment for mimicking you..OMG...Good for you for firing him..you deserve a gold star..Just another one I'd say..here mister..take a sip from my RSD cup!!!!

Sorry about your Valentines Day meal and the mishap...so sorry...I hope your belly is feeling better now..

Hugz, Kathy

[lostmary]

Wow, you have been thru a lot. bless your heart. you shouldn't have to go thru that. If you aren't happy with JH hospital, pm me and I'll let you know the hospital I go to in Silver Springs. Great pain clinic. they will do whatever is needed to see that you can live your live as best as you can.

Hugs,
Mary

[SandyRI]

Egotistical dirtball...too bad you couldn't have saved your barf for his shoes....when he was imitating you...just to demonstrate for him how sick you get...

there may very well be more rotten docs out there than good ones. What gives? My husband has to drive me to Boston to see my doc, there is no one in this sad little state of RI that I have been able to find to take care of my RSD. And my Boston doc is so busy that I can't get an appt when I need him anymore - he's booked solid for 6 weeks straight or more at a time.

I really hope that JH works out for you. Do they have ketamine there? Or do you need to go to George Washington in DC or Drexel Univ in Philly if you decide that you would like to give it a try?

XOXOX Sandy

[SandyS]

Kim,

I am sorry that happened to you. No one deserves to be treated that way...especially by someone that is supposed to be helping you. He's lucky I wasn't' there with you... You are a very strong lady. I am proud of you for firing him. Some doctors have no business being doctors. I hope that John Hopkins is a great place for you. Remember, he will stand before God one day!

Soft hugs,
Sandy

" Never look down on anybody unless you're helping him up. "- Jesse Jackson

[loretta]

Originally Posted by SandyS

Kim,

I am sorry that happened to you. No one deserves to be treated that way...especially by someone that is supposed to be helping you. He's lucky I wasn't' there with you... You are a very strong lady. I am proud of you for firing him. Some doctors have no business being doctors. I hope that John Hopkins is a great place for you. Remember, he will stand before God one day!

Soft hugs,
Sandy

" Never look down on anybody unless you're helping him up. "- Jesse Jackson

Hi Kim, I am so very sorry you went thru that ordeal. How RUDE! and good for you getting rid of him. John Hopkins has a good reputation of being a fine hospital. I hope you get a compassionate, kind, Dr.

Our disorder is so misunderstood. In fact, most people have never heard of it including Drs. RSDSA is a wonderful organization, concentrating on education of RSD to the Medical Field and the public. I went to their annual meeting last year.
Please don't ever worry about telling us 'how it is' when you come up against someone like that. We know exactly what kind of person they are.
I just called my RSD Dr. at noon today to tell him of a new symptom and he was so kind and gracious. Gave me some instructions, wants my last blood draw records, and then go from there. Then called me sweetie at the end. Been seeing him 6 years now. He is a brilliant man, neuro, psychi & pharmacologist.In 15 years with this, I'm better than I ever have been. Doesn't mean it's gone, I''m mobile, on fewer meds, just came up this month, some breathing problems-after I get that settled, am going to try the HBOT. I so hope it works.
When I started seeing him, I was full body,generalized. What has helped me, is his knowledge of neuro and meds. making tiny adjustments one med at a time, till I'm sleeping when I didn't used to. Pain meds have come down, because of good sleep. toes started curling-he told me what to do. 4 months later they were flat and walking again. A good RSD Doc. is critical.
Please us know how you are doing, Yes, please share your pain, we are here for you!!!!!!Your friend,loretta with soft hugs

[cindi1965]

Originally Posted by kim ames

MG.

I edited the post. Was so upset I forgot the best part! Threatened to cut off meds unless I start walking right!!!!

I am soooo sorry that you had to go through that...I was born with cerebral palsy and it effects my walking and the first time I went to my neurologist he almost said the same thing to me....I called my mother in the middle of the exam and she explained better why and how the CP effected my walking. Now on top of the RSD I just walk the beat way I know how...I have fired 2 pain doctors so far and the one that I really like doesn't take my insurance....so my MD is helping me manage my pain. He has MS and understands soooo much better than than any pain "management" doctor can. If I can find a good pain doctor that will take my insurance I will have to hang in there. Prayers go up for you

[mellowguy]

Originally Posted by loretta

Hi Kim, I am so very sorry you went thru that ordeal. How RUDE! and good for you getting rid of him. John Hopkins has a good reputation of being a fine hospital. I hope you get a compassionate, kind, Dr.

Our disorder is so misunderstood. In fact, most people have never heard of it including Drs. RSDSA is a wonderful organization, concentrating on education of RSD to the Medical Field and the public. I went to their annual meeting last year.
Please don't ever worry about telling us 'how it is' when you come up against someone like that. We know exactly what kind of person they are.
I just called my RSD Dr. at noon today to tell him of a new symptom and he was so kind and gracious. Gave me some instructions, wants my last blood draw records, and then go from there. Then called me sweetie at the end. Been seeing him 6 years now. He is a brilliant man, neuro, psychi & pharmacologist.In 15 years with this, I'm better than I ever have been. Doesn't mean it's gone, I''m mobile, on fewer meds, just came up this month, some breathing problems-after I get that settled, am going to try the HBOT. I so hope it works.
When I started seeing him, I was full body,generalized. What has helped me, is his knowledge of neuro and meds. making tiny adjustments one med at a time, till I'm sleeping when I didn't used to. Pain meds have come down, because of good sleep. toes started curling-he told me what to do. 4 months later they were flat and walking again. A good RSD Doc. is critical.
Please us know how you are doing, Yes, please share your pain, we are here for you!!!!!!Your friend,loretta with soft hugs

Bless you loretta,,you said it right. It seems when they put on the white coat,,they can walk on water and be a judge at the same time. I too agree that there are plenty of great doctors who do care and have some measure of compassion. I wish there were a book that listed them. But..it would be very thin. Not to mention there location would be so spread out, it would take days to get to one. After 14 yrs. of dealing with all level and so called specialists, I have come to the conclusion that their understanding of a patients needs are opague and worth their time to really understand our pain.
Drink from my crps cup is a great way to get across to the demi-gods that all their medical books and education have them in the dark room of compassion.
Sorry to rant.. But a huge nerve was hit when I read this one. ever try to tell a md that another one is insensative? They look away and break the focus of your anger. Thanks for your post. mellowguy