Holy cow Kathy, now that is so not right. Do I dare ask who ur surgeon was? U can PM me. I dont plan on having any more surgeries but sure would like to know for others sake.
Cyndy

I know crazy right, Cyndy.... At the time I didn't question his motives as he claimed he need to cut it to have room to work inside my chest....and he was the best thoraic surgeon here... AND to boot he is now retired as he developed a brain tumor and moved out of the area...... this was 20 yrs. ago..following a bad car accident.... I would love to pM you..how do I look up your name for that..invite me to be your friend..then I will be in touch.. mine is under keep smilin...

Hugz, my friend, Kathy

I've not heard of the nerve being cut with TOS, I did want to say though, RSD comes with TOS surgery more often then not. You will see a lot of the TOS forum people eventually move over to here due to the RSD. I spent years on the TOS forum before coming here.

Drs. do TOS surgery differently. I had my first rib taken out on the right side by a Dr. in Denver that just went through the neck area, some cut people up quite a bit for the surgery. I have seen 2 done differently then mine.

There is no cure for the TOS either, the surgery usually just helps relieve some of the pain and symptoms. I also had 4 inches of muscle taken out on the right side to relieve the TOS pain.

Ada

Good morning my friend...

I didn't realize you had a rib removed... I am sorry knowing what I had to endure that you had it too..they took two of mine..#1 on each side..6 weeks apart to allow for healing...I was cut under my arm pit both times on each side and having a chest tube in below that each time...Why were yours taken out?????

Luv, Kathy

Thanks Bobber for your great explanation. I have researched and have come up with the same conclusion. It makes total sense to me. I needed to hear someone else say it. I also have CRPS2. Originally had a few injuries and CRPS was missed(had all symptoms of CRPS and one Dr. suggested it before surgery but didnt follow thru). One injury was a major nerve entrapment so had surgery to decompress. After surgery it was calm while i did nothing, once PT started the CRPS spread quickly to all 4 limbs and face. (all the while ortho continued to deny it was CRPS!) All Drs. still think it is compressed due to the spread and pain at original site. Ortho asked if i want to do surgery again-she said new info reports if compression and have CRPS it is best to try to relieve compression. This does make sense to me. Pain Drs. say no way! Unfortunately it is a viscious cycle-how will it stop if the nerve is still compressed. Has anyone had surgery after knowing they had CRPS to relieve the original compression??? Maybe i could try ketamine right before surgery to hold me over from spreading. Please let me know. momof4

i really got scared when i read about this. my dr says because mine is a direct nerve injury the rsd will stay where it is. it's just the ulnar nerve that's hurt so it's just the ulnar nerve's range that's affected. i'm 18 months in and it's unchanged. i really hope and pray that it stays right where it is, that was my big scare when he first diagnosed it and gave me info. but both my pain drs say that rsd2 stays at the injury site. i'm so sorry that yours didn't and i'm really hoping that my drs are right about this. somehow.

Sukadog
Im glad that you are 18 months into this without a spread,,,what seperates RSDI and RSDII is the severity of the damage done to the nerve,RSDII is ussually [asposted above[ from a knief wound or bullet wound or from arthoscopic surgery to the knee or hip,,,,read my upper post,some didnt understand what i wrote,,its simple to understand,,,RSDI and RSDII can both spread at different rates[which i noted] but IN MOST CASES.RSDI spreads slow over a period of years where as RSDII Causalgia,,most ALWAYS spreads at an ACCELERATED RATE WHICH DENOTES IT to be the worst of the two,,MOST often a person with RSDI spread over a few years,,will be the equivalent to the a acouple months spread of RSDII{FACT}{.....sorry that some still didnt get it,,,,,,,,,good luck sukadog

momof4
Alot of dr;s dont like to do the nerve release sugery anymore ,worried it will make it worse,,in some surgeries,they will afterwards put you foot ,hand ect,,in a boot to keep you from going back to early exercise which causes scar tissue,taking you back to square one,,the problem with the boot is disableing the limb too much will cause rsd to spread or mostly loss of bone density[better said] to set in,,alot of people will get a removable boot to take off a few hrs a day...what im hearing now ,is there aresome dr;s going back to the release surgery practise with new techniques that are very favorable,,,,If I had a choice[ I do not have any insurance now],,,I would elect for the surgery,on the merit fact that my RSD is spreading so fast now,I think it would benifit a person in my perdicament,,,,but someone with a slow progression,,I would not advise it,,,,I have spoken to some who and read where after the release,,the RSD will recede in 2 occasions,,it was full body,,,A lady had a entrapment release in her ankle,and even the RSD in her arms and shoulders receded.....I do not recommend any surgerys unless nesssesary,,,,,but for me in my case,,,I would in a heartbeat,,its spreading agressive anyway,,,,FYI,,,I also heard that theyeven do trigger point injections aorund the entraped nerve to slow it down,,,,,,,,,,I wish you well,all of you,,,,,,,,,,and thanks for your concerns mike,,,WE all need a pat on the head once in a while,,,,,bobber

Sukadog, Dont worry. Maybe yours was found and treated early enough to keep it localized. Mine wasnt acknowedged til a year so it was already chronic. That is why it is so important that all Drs. are updated and aware of RSD(especially Ortho!) because it is known now that if treated within the first 6 months you have a better outcome.

thank you!!! i'm still doing ok and kind of in a holding pattern. god bless!