[sukadog]

just curious. if you have that incredibly intense heat, what works for you? thanks!

[hannah1234]

honestly, nothing. I take my shirt off, or pants. NO FANS, a comfortable room, if i have to turn ac or heater on I do that.... Or I take a bath... Good luck... Take deep breaths and pray to our good Lord above

[daniella]

Time,taking off my sock,and trying to move as much as I can. For me when symptoms get high I tend to become stiff and still which in the long run makes things worse for me but you know it is a catch 22.

[RNcrps2]

Heat/hot epsom salt bath works best for me. I have RSD in all 4 limbs and have found this to work the best. The 1st time it spread to the side of my face I automatically put a cool washcloth on and almost died! It is just hard to understand why heat helps the burn but i put a heat pack on and it helped. momof4

[SandyRI]

Topamax helps me with the heat and burn on the back of my neck and my head. I can immediately tell if I've missed a dose. I also take Cymbalta.

P.S. - I have "cold" RSD - the only burn I experience is in my neck and head. My extremities are often freezing cold, I wear 2 pairs of socks and gloves to bed and carry a heating pad and blanket everywhere I go in the house. So my symptoms might be the opposite of yours.

Good luck

Originally Posted by sukadog

just curious. if you have that incredibly intense heat, what works for you? thanks!

[dreambeliever128]

I do like Hannah, come out of my socks, clothes, and use a fan. I can't handle a cool bath so the warm water makes me worse.

Meds can cause the heat to be worse and sweating.

Ada

[WellLovedMom]

My closet contains almost all sleeveless and tank tops! I also live in my Birkenstock sandals. People look at me funny for wearing sandals in the rain, but just think... your feet dry faster indoors, and no wet socks . I do also have slip on "mule" style Birks, that I can wear when it is actually down to the 30s & 40s outdoors. I discretely slip off my socks and stuff them in my purse if I overheat when back inside, which allows me to try to regulate body temp. OH! My staple is ice-tea or ice-water. It has to have actual ice in it (otherwise it just isn't cold enough). Like many here, ice-packs can often cause pain, so cooling the body from the inside is fast, and doesn't hurt. The family has gotten used to mom changing outfits 3-4 times per day (I stack them and often re-wear for a couple of days, as sometime my temp changes after only 10 minutes, and as long as the clothes are fresh, no sense adding to my laundry load!).

Excellent post! I love to hear other peoples ideas!

[edever34]

Are you talking about RSD sweats or deep bone burning pain?
If it is the burning pain , I also find that Epsom baths work and believe it or not someone on this forum a while ago told me to wrap up in warm blanket! Now that sounded backwards to me but I tried it and sure enough it helped. I too have heating pads etc all over the house cause RSD is in foot and cannot wear shoes so feet freeze and burn at same time. Cymbalta has been a miracle for me with the burning too-Fondly-Carol

[olecyn]

I use:

1. contrast showers & baths
2. cold therapy (FOR ME) only because 10 years my internal temperature is/was the only thing that helped back in 2000.

I also live on Lidoderm patches, open up laying on the floor to get the oxygen & circulation movin' to the tissues, vessels, muscles & nerves

[sukadog]

Originally Posted by WellLovedMom

My closet contains almost all sleeveless and tank tops! I also live in my Birkenstock sandals. People look at me funny for wearing sandals in the rain, but just think... your feet dry faster indoors, and no wet socks . I do also have slip on "mule" style Birks, that I can wear when it is actually down to the 30s & 40s outdoors. I discretely slip off my socks and stuff them in my purse if I overheat when back inside, which allows me to try to regulate body temp. OH! My staple is ice-tea or ice-water. It has to have actual ice in it (otherwise it just isn't cold enough). Like many here, ice-packs can often cause pain, so cooling the body from the inside is fast, and doesn't hurt. The family has gotten used to mom changing outfits 3-4 times per day (I stack them and often re-wear for a couple of days, as sometime my temp changes after only 10 minutes, and as long as the clothes are fresh, no sense adding to my laundry load!).

Excellent post! I love to hear other peoples ideas!

i can relate to that. just sleeveless. fortunately, i live in florida, but when it drops below 50 i wear a winter puffy vest (sleeveless) and people look at me like i'm crazy. oh well. all my clothes are in a pile because it's too painful to try to put things on hangers. besides i also only wear them briefly, just drs visits and quick grocery/drug store runs. otherwise i'm in loose yoga or pj pants with a tank top. amazing how that always makes me feel a little better.