Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-25-2010, 04:09 PM #8
hollyk24 hollyk24 is offline
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Join Date: Feb 2010
Location: Portland, Oregon
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hollyk24 hollyk24 is offline
Junior Member
 
Join Date: Feb 2010
Location: Portland, Oregon
Posts: 57
15 yr Member
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I don't know about normal, but I can totally relate . . . I have to force myself to eat most days, and often times get sick and have to throw up.

Stress can also cause me to get sick, any time I get really upset my stomach immediatly follows suit. Also, my pain level can get so high sometimes that I throw up, I think it's just my body's reaction to it all. The meds also do not help . . . . My doc gave me something for the nasuea, and it helps sometimes, but not always, and didn't help with my appetite.

Another thing, and this really depends on what state you live in, is marijuana. In Oregon (where I live) you can have it for medicinal purposes. There are times when I can't use it because it tends to make some of the throbbing pains worse, but lately I've found it can really help with the nausea and appetite, and also helps a little with the burning pains. There are the obvious cons to it too, especially if you are in a state where it is not allowed, and certain kinds can definatly impair you too much to really function. I'm lucky that in my state there are many growers that specialize in certain strands for medicinal purposes, so I can get some that won't knock me out or make me too stupid, but will still help with the pain, nausea, and appetite. But it's really something that I can only use in the evening, as it still impairs me enough that I can't work with it.

I almost went about a month last december without being able to keep any foods down. I'm now at the point of being able to eat one, maybe two, very small meals a day, but I keep the fluids going like crazy.

The problem is, once you stop eating, it's going to lead to more problems, and make it harder for you to mentally and physically deal with the pain. I had to start with one or two bites every 5 or 6 hours, with a nap after to start keeping food down, and I'm still nauseas at some point every day. You just have to hang in there and keep trying different things until you can find something that is workable for you.
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