Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-05-2010, 02:51 AM #1
Kakimbo Kakimbo is offline
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YIKES! Sorry you have to suffer this..
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bobber (03-07-2010)
Old 03-05-2010, 08:39 AM #2
SandyRI SandyRI is offline
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Bobber - and everyone else - thanks. I'm sorry for everyone else's struggles too. Life is not fair.
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Old 03-03-2010, 01:56 AM #3
hope4thebest hope4thebest is offline
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Hi Sandy,
First, I am so sorry that you have to continue to battle for the treatment that you need and that could be a turning point for you.

I don't have any factual information to offer....only my hope that you continue to appeal, re-appeal, re-re-appeal, and try and find the fortitude to keep on it! Write letters, make phone calls, enlist your doctors to write letters of support.

I wrote letters, sent e-mails and my docs did the same for some authorizations that I had to fight for and were granted...albeit, it wasn't ketamine infusions (not yet...) but the persistance helped...

Has your attorney offered any advice or guidance on getting approval from United healthcare? Do you continue to pursue it with W.C. or is that a closed book re: the ketamine infusions?

I, too, would be curious to find out how others have received approval from United healthcare! Have you asked them about their clients who have received approval? i wonder how they would answer that question? (with honesty, I hope, as the phone calls are being recorded!!!!)

Sandy, don't give up...call up the newspaper, TV news station and let them know of your plight...some negative P.R.might push the insurance company over the edge in your favor!! I have seen that happen in the past..
As far as the loan/gift from your parents, if it were my daughter who was in the predicament we are in (RSD) I would do anything to help her!! I know you would do the same for your children, as children or adult children..
Your parents want to give their financial help along with their love...
Thinking of you,
Hope4thebest
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Old 03-03-2010, 06:33 AM #4
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Sandy -

If you're on a UnitedHealthcare PPO through work - your's or your husband's - it couldn't hurt to put in a call to the employer's Employee Benefits Dept., where they may have some leverage either through their broker or an in-house rep at UHC assigned to their account. They should at least be willing to take the time to read any studies or the like that you can fax into them.

Good luck!

Mike
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