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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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03-10-2010, 02:45 PM | #1 | ||
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Junior Member
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Just got back from the doctor. I know everyone is going to say try to get a RSD doc. But I had to go back and see what he said. I had a copy of the bone scan sent to me. It said that "The increase uptake in the periarticular are of the foot could be due to RSD. Suggest further correlation. I told him that 12 years ago I had surgery and the same thing happen. I was told RSD. Few years down the line they also said Dystonia. It has settled down. The nerve test showed problem in the feet. Had plantar F. surgery in Nov. So I told him that they hurt all the time, burn, sweat. stabbing pain near surgery. He asked if I had back trouble or pain down my leg. I said not really. I have burning in my thigh since the nerve test on right leg.
So he is sending me for epidural steroid injection. for my feet. Will this work since the nerve test showed I didn't have problems in my back it was just in my feet. He said I don't thing you have rsd. Please give me any advice. Then he said come back in 3 months. Nothing for the pain. I'm not a drug addict. I have been going with out pain meds since Jan. I only saved them for night time to try and calm my feet. I'm upset. I hate to waste good money if this is not the right test. |
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03-10-2010, 05:11 PM | #2 | ||
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First I want to say I am so sorry that you are having so much pain...But, I am going to say you should see a doctor that treats RSD. Where do you live?? Maybe someone here can recommend a good RSD doc in your area.
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03-10-2010, 06:03 PM | #3 | |||
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Magnate
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I have plantar fascitis. I started wearing New Balance shoes, did some exercises to help and stayed off of my feet for a long time. It helped me a lot.
I take walks but I do watch for symptoms popping up and then quit walking for awhile. I was told years ago that the tendons in the back of my legs were too short when we lived in New Mexico. I went to the ER and the Dr. there told me this and it is one of the causes of plantar fascitis. I am sorry you are having these problems. It's possible you have both. I would find a good Pain Management Dr. or see an Anesteologist for the possible RSD. I didn't know you could have surgery for the PF. Did you have any PT first? Ada |
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03-11-2010, 10:13 AM | #4 | ||
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Magnate
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Is this called epidural steriod injection? Does this doc deal with rsd? I agree with the others if not go for another opinion with one who does. With one of my rsd pain docs they were going to do an tunneled epidural catheter that is put in your spine but gives you relief to the legs?So I am wondering if that is what they are trying to attempt to do with the injection. Was the nerve test performed by a neuro if not I would see one too. Hang in there and feel better
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03-11-2010, 03:32 PM | #5 | ||
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Junior Member
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I did numerous nervous system injections and all they did for my pain was give me pain in my back as well as my legs. Everyone is different though. I know people that the injections have worked for. I have gone all 7 months without any pain meds. It sucks that you have to worry about being labled as a drug addict, but I worry about the same thing. So I just deal with the pain everyday. Although it's getting more and more difficult to just deal with lately. I guess that is why we have a place like this where we can help and support each other. Good luck with your procedures and I hope whatever it is, is taken care of quickly. |
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"Thanks for this!" says: | Kakimbo (03-12-2010) |
03-12-2010, 12:15 AM | #6 | |||
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I was diagnosed with planter fascitis first, and then finally RSD and they always send me for MIR's on my back...My RSD is in my left leg and right arm, so I get exactly what you are saying.. IDK why they do that to us.
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03-12-2010, 01:44 AM | #7 | ||
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Junior Member
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My neighbor friend is a doctor. I don't like to bother him. But I final did last ight. He called his pain dr. friend and he had me talk to him. He is about 40 mile from my house so he told me where to go and what to do. So I'm on my way. What did you do for yor pf? I had pt. 11 ejections. that would be in both feet. I am worse off now. Should of never dd the surgery. |
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03-12-2010, 01:50 AM | #8 | ||
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03-12-2010, 01:51 AM | #9 | ||
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Junior Member
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So what did the MRI on your back show?...Did you have one on your feet? ot shoulder. What test did they do to day you have RSD/
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03-12-2010, 09:45 AM | #10 | |||
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Magnate
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My PCP taught me some stretches to stretch the tendons in my calfs. As I said, I also wear New Balance tennis shoes and they help me. I just bought a new pair of Sketchers shape ups. I hope I can wear them since my New Balance shoes are 3 years old. Not worn out though, just look ugly now.
The summers are worse on me since I tend to walk a lot. I have to make sure I don't overdo it and make the feet problems worse. I do have back problems also though. I never connected that to my feet problems? I went to a new Dr. yesterday for my pelvic pain and I am learning, they are only practicing medicine. I won't have surgeries for any of that though. The feet and hands seem to be more susceptable to the start of RSD or spread. I also have a neuroma between two of my toes and I won't have that removed. I do however get shots in my foot for it. The last one was about 3 years ago and it has kept that calm. I hope this Dr. helps you. Ada |
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