Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-17-2010, 10:53 PM #1
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Sad to say but it is extremely true Bobber. I think we all have those fits of rage.. I almost beat my 26 year old little brother to a pulp the other night for being a jerk.. He just treats me like crap.. I think its just our Norm.. We cant help but let it out.. Maybe one of our stages we go through..I want to say anger, but then we would always be angry, and im not always angry.. So its hard to say.. But im sure you friend will be ok.. If you apologize or explain.. Dont worry. You are a kind and gentle soul with a great heart. and i doubt you would ever intentionally hurt anyone.. More people need to be just like you in this world to be honest. and remember we are always here for you.. You can rage at me anytime you like.. I will let you.. I like to argue.. I might not make sense, but you might get a few laughs out of it.lol
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Old 03-18-2010, 01:40 AM #2
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Originally Posted by bobber View Post
Ive not heard too many people discuss melt downs,,,I am a compassionate man,I have empathy for others and Love life and God. Ive noticed thru the course of this disease,whether its just wearing me down physically and mentally of if in reality,its destroying the mind,plus I have factored in the side effects of medicine to the demeanor of a persons charactor. What has scared me and alarmed me is that the other day ,while on the phone with a friend of 15 years,he was in error of a subject that he kept debating me on,he later on after reasearch found that he was wrong,But the focus of this thread ,is after discussiong the matter for an hour on the phone and him defending his views,,I had a major melt down and Wigged out on him. I snapped..I felt like I was loseing my mind,,in rage I ranted,,,That is not me, where did this come from,,Its like turning into a wearwolf,,My patience have grown thin,,,I love my wife dearly,,I appreciate you people as well,and know everyone is hurting,,But this gives me no right to lose control,,My med intake is small due to sensitivity,,But its still a factor,,but the rage that came out of me,is not the person that I want this disease to turn me into,,In the last year Ive became short with people at times,when before RSD came into my life,,,I am so sorry,,with this rapid spread,has comsumed me..I want to hold onto my integrity,,,Has anyone else experineced this,,,Im trying to comprhend whether its just the disease keeping me in pain the meds,the shock of the spread,ect,,,or is it the RSD, deterorating the mind. Im not like that all the time,I try to be up beat,,,but I do notice a change going on,,,I used to be able to debate or argue with the best of them ,so to speak,,but now,my button has gotton bigger,for which is a huge defect to my charactor,,Ive noticed that I dont handle contoversal problems well any more,,I mean I do handle everyday issues ok ,,So im not like that all the time,,I havent been that easy for someone to draw me out like that,,,,Im just going by the other day when I T'ee'd off on my buddy on the phone,,,,,,,,,,,,,,bobber ,,,PS plus Im getting older than dirt and I dont want to end up in a rubber room,Liveing out my end days in a paddle cell with a guy named no neck vinnie bringing me my thorseen shot to shut me up
Bobber, you have opened yourself up to us all for us to know you have a kind and large heart. You are going thru such a tough time right now, with new systems. I know your stress level has got to be way up as all of us have experienced when we have spread or a flare up. I hope you have let this go and forgiven yourself.
I went thru a couple days of horrible crying. My emotions were bottled up and needed to get out.
Please take care and let us know how you are doing. Your friend, loretta with big hugs
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Old 03-18-2010, 01:03 PM #3
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Quote:
Originally Posted by bobber View Post
Ive not heard too many people discuss melt downs,,,I am a compassionate man,I have empathy for others and Love life and God. Ive noticed thru the course of this disease,whether its just wearing me down physically and mentally of if in reality,its destroying the mind,plus I have factored in the side effects of medicine to the demeanor of a persons charactor. What has scared me and alarmed me is that the other day ,while on the phone with a friend of 15 years,he was in error of a subject that he kept debating me on,he later on after reasearch found that he was wrong,But the focus of this thread ,is after discussiong the matter for an hour on the phone and him defending his views,,I had a major melt down and Wigged out on him. I snapped..I felt like I was loseing my mind,,in rage I ranted,,,That is not me, where did this come from,,Its like turning into a wearwolf,,My patience have grown thin,,,I love my wife dearly,,I appreciate you people as well,and know everyone is hurting,,But this gives me no right to lose control,,My med intake is small due to sensitivity,,But its still a factor,,but the rage that came out of me,is not the person that I want this disease to turn me into,,In the last year Ive became short with people at times,when before RSD came into my life,,,I am so sorry,,with this rapid spread,has comsumed me..I want to hold onto my integrity,,,Has anyone else experineced this,,,Im trying to comprhend whether its just the disease keeping me in pain the meds,the shock of the spread,ect,,,or is it the RSD, deterorating the mind. Im not like that all the time,I try to be up beat,,,but I do notice a change going on,,,I used to be able to debate or argue with the best of them ,so to speak,,but now,my button has gotton bigger,for which is a huge defect to my charactor,,Ive noticed that I dont handle contoversal problems well any more,,I mean I do handle everyday issues ok ,,So im not like that all the time,,I havent been that easy for someone to draw me out like that,,,,Im just going by the other day when I T'ee'd off on my buddy on the phone,,,,,,,,,,,,,,bobber ,,,PS plus Im getting older than dirt and I dont want to end up in a rubber room,Liveing out my end days in a paddle cell with a guy named no neck vinnie bringing me my thorseen shot to shut me up
I can appreciate this post! I am normally a very tolerant and forgiving person. I have had CRPS/RSD for 7 months, diagnosed, but think I have really had it for about 3 years after 2 major heart attacks and open heart surgery.
I have noticed that my tolerance for others and my family has been reduced to say the least. Sometimes I just want to yell at everyone for just talking.
I used to be "the life of the party" always joking and laughing. I used to go out of my way to avoid confrontation and stay neutral when it came to dabates. Now, I have actually had a friend tell me they were purposly avoiding me because the conversations are so depressing and difficult to get through. I appreciated the honesty, but boy did it hurt to hear. I realized as she told me this, that for the past year my family and I have not been getting invited to get togethers and events like we used to.
I have always cherished the fact that I had a ton of friends and that I was a social butterfly.

I don't want to be like that, and I try to remain positive as much as I can. However, I catch myself complaining of the pain multiple times a day. I also find myself being paranoid that no one believes that I really have something wrong. It's a horrible thing to go through.

I hope you were able to reconcile with your friend because having friends is one of the most important things in life. Everyone tells me if they are really a good friend they will hang tough with me. But, I think everyone has a point though where they don't want to be around someone. Im a marriage it would be called a Divorce. Regrettably, in a friendship if feels more like abandonment. I have to remind myself constantly it is not the world against me. It's mainly me against me right now. That is why this site is so great. It helps me see that I am not alone in this process and others are dealing with the same exact problems I am, and many times, they are much worse shape than me. I just havent learned how to cope with this yet. I hope I learn soon.

I wish you the best.
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Old 03-18-2010, 04:47 PM #4
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Thank you everyone
I truly appreciate all the replies,,They have encouraged and strengthen me. I know That God has a plan for each and everyone of us . I just need to pray more for the wisdom and patience to see me thru this. I want to focus more on the Lord, Life,my Wife and let God hold the reins instead of me ,,Its nice to know that you all are supportive of everyone here,,may the Lord in whom I serve and Love and fear,,rain blessings down upon you all,,,,,,,bobber
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Old 03-27-2010, 12:55 AM #5
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Yay bobber!!!!!!!
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Old 03-30-2010, 01:57 AM #6
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Quote:
Originally Posted by Bossle View Post
I can appreciate this post! I am normally a very tolerant and forgiving person. I have had CRPS/RSD for 7 months, diagnosed, but think I have really had it for about 3 years after 2 major heart attacks and open heart surgery.
I have noticed that my tolerance for others and my family has been reduced to say the least. Sometimes I just want to yell at everyone for just talking.
I used to be "the life of the party" always joking and laughing. I used to go out of my way to avoid confrontation and stay neutral when it came to dabates. Now, I have actually had a friend tell me they were purposly avoiding me because the conversations are so depressing and difficult to get through. I appreciated the honesty, but boy did it hurt to hear. I realized as she told me this, that for the past year my family and I have not been getting invited to get togethers and events like we used to.
I have always cherished the fact that I had a ton of friends and that I was a social butterfly.

I don't want to be like that, and I try to remain positive as much as I can. However, I catch myself complaining of the pain multiple times a day. I also find myself being paranoid that no one believes that I really have something wrong. It's a horrible thing to go through.

I hope you were able to reconcile with your friend because having friends is one of the most important things in life. Everyone tells me if they are really a good friend they will hang tough with me. But, I think everyone has a point though where they don't want to be around someone. Im a marriage it would be called a Divorce. Regrettably, in a friendship if feels more like abandonment. I have to remind myself constantly it is not the world against me. It's mainly me against me right now. That is why this site is so great. It helps me see that I am not alone in this process and others are dealing with the same exact problems I am, and many times, they are much worse shape than me. I just havent learned how to cope with this yet. I hope I learn soon.

I wish you the best.

bossle,

if you ever need to talk feel free to pm me.. I am fairly new to this myself.. I just recently came to grips with my life the way it will become as well.. anytime, i can help. I can give you my cell number and i can help i will ok.. your not alone in this battle.. just remember that.. even if it is just to rant.lol
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Old 03-30-2010, 11:45 AM #7
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Originally Posted by babs74 View Post
bossle,

if you ever need to talk feel free to pm me.. I am fairly new to this myself.. I just recently came to grips with my life the way it will become as well.. anytime, i can help. I can give you my cell number and i can help i will ok.. your not alone in this battle.. just remember that.. even if it is just to rant.lol
Thank you Barbara, I appreciate it.
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Old 03-30-2010, 05:35 PM #8
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Hi Bobber- I am such a newbie to the forum, and for such a different reason, as I only suffer chronic neuropathic pain following tramatic injury in a car wreck a number of years ago. Having viewed a number of your posts of encouragement on the threads, I know well you are among the fibers God has woven into this loving tapestry known by the name of love. Certainly, you, and each of those numbered among the visitors to these pages either experience pain overwhelmingly as a personal thorn in the side or lovingly support one who does. Much of life we once knew has been seeminly robbed from us, as though a thief snatched cherished things from us not once, but time and time again.

Times come when in the throes of pain we are not as loving to those round about us as we might rather be. It is in those times I find I have to lean on my faith relationship with God to put myself forward once more, looking back over my shoulder to realize those prints in the sand are not mine, but the one who carries me [heck, if the prints in the sand were mine, there would be the little mark from my cane alongside a foot, or I would just be bogged down altogether in my wheelchair, because that wonderful device likes neither sand nor snow].

So many are praying for you now, as am I, that I believe you have to be feeling the or given to lift you from such moments even as they are bound to recur tomorrow or a few days from now. None of us are without blemish. It's the human condition. May you know fully the love of ALL who are around you in those times of doubt.

Blessings upon you Bobber,
Mark56
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Old 03-31-2010, 10:22 AM #9
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Mark
God does know when and who to use to encourage his people. I have had a aggressive spread for about a year,but it in the last few months it really started to go internal,bad.
My hope is in God,his word is eternal[internal as well] " For God does speak -now one way.now another though man may not persieve it " Job 33:14
So I always am on the look out for him. And it ironic that you mention that we feel robbed of what we had in our past,,our flesh with afflictions,,our thorn,,,,,I was a sponsored player for e-force 2years ago before this tragic event,,I was always on the move,,very competitive in every sport I entered,,I was playing 4 hours day, 5-6 days a week,,,now i dont like even going to the mailbox...Its heart wrenching,,,But I know that God has plans for me,,he does not make mistakes,,and if rsd didnt happen,then I would not have met all the wonderfull people that i have ,because i would be too consumed with being on the courts,running around like a little beagle chasing a little blue ball.
I thank God for the people like yourself and others on this board who he has touched to give me hope,knowing that he hasnt forgot about me,and he has work for me to do to honor his name,,May he be for ever be praised,,,There are things in my mind,heart,soul,and inner most being that no one but the Almighty knows,,And he confirms my thoughts and encourages me,corrects me and guides me,thru his Word and touching others to encourage me by speech and pen,,he answers me...i have not been forgotten .
" Therefore we do not lose heart. Though outwardly we are wasting away. yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far out-weighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal " 2nd Corinthians 4:16-18
" For a while we are in this tent,we groan and are burdened, because we do not wish to be unclothed but to be clothed with our heavenly dwelling, so that what is mortal may be swallowed up by life.Now it is God who has made us for this very purpose and has given us the Spirit as a deposit,guaranteeing what is to come. Therefore we are always confident and know that as long as we are at home in the body we are away from the Lord. We live by faith and not by sight."
2nd Corinthians 5:4-6

Last edited by bobber; 03-31-2010 at 03:52 PM.
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