Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-18-2010, 08:42 PM #1
RNcrps2 RNcrps2 is offline
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Debby, Hi. It doesnt matter to me when it was written either and i think your right w/c will try to just get rid of me so i guess it doesnt matter when he wrote it. He did see me before surgery but never mentioned that i shouldnt have surgery if it was RSD. I think with the other injuries, especially a +EMG from a compressed nerve(the symptoms can be similar) they have to be ruled out before they call it RSD. My ortho didnt believe it was RSD until symptoms spread.
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Old 03-18-2010, 09:14 PM #2
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RNcrps2,
I went to a podiatrist when this started for me as both feet burned. So, I figured the pain is in my feet so that is who you go see right? A foot doctor. He said I had 2 neuromas in my left foot & 2 in my right foot. He never once told me I had RSD probably. He said it was 50/50 that the pain would go away with surgery to remove them & 50/50 that it could get worse. Stupid me I took the attitude of 50/50 it would go away. I let him do surgery on the left foot only. After he tried cortisone & alcohol shots in both feet. HOLY COW did both of them hurt??? oh heck YES!!! Made the burn way worse. Anyway woke up from surgery & my left foot pain had gone up several octives more. I didn't know burning pain could be so bad. If he had suggested RSD, I would have researched it. Dummy ME!!! After surgery is when I finally went on line & researched burning pain & RSD kept coming up again & again as the only thing it could be. By then the podiatrist had sent me to a PM Doctor. He dx'ed me after I asked if that is what I had....he said I do believe it is what you have, & here I am.........But point is I would NEVER have had surgery...........my right foot has gotten worse over the years but still not as bad as the left. Now this new 'stuff' happening Probably what is called full body flares. I never had an injury to have caused this to happen in my feet either unless wacking one against a door frame & the other against a box several months before it started.......but to wake one morning & have both of them sending off the burn is such a coincidence.

Ack all well...........sorry to have gotten into ramblin' here..................

Hopefully he will come around, some doctors have such 'issues' about their integrity when it isn't even about them..........know what I mean??? Good luck again as I said before...............

Debby
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"Thanks for this!" says:
RNcrps2 (03-22-2010)
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