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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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How do you explain RSD to friends/family?

 
 
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Old 03-25-2010, 12:59 PM #9
edever34 edever34 is offline
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Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
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edever34 edever34 is offline
Member
 
Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
15 yr Member
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My Neurosurgeon said to tell it like this-People can relate to it.

Everyone has heard of Muscular dystrophy (dystrophy meaning malfunction)
Well I have Nerve Dystrophy- a malfunction of the Nervous System
You can see muscular dystrophy, but for me one of the hardest things is that you cannot see my problems some of the time.
This has worked for me for 2 years-Hope it helps you-Carol
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"Thanks for this!" says:
Kakimbo (03-25-2010), Mycah (03-27-2010)
 

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