Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-29-2010, 03:36 PM #5
mjl1261 mjl1261 is offline
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Join Date: Nov 2009
Posts: 33
15 yr Member
mjl1261 mjl1261 is offline
Junior Member
 
Join Date: Nov 2009
Posts: 33
15 yr Member
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Did you possibly pick his ortho's brain as to why he commented as he did???

***********************

I didn't challenge the doctor at the time because my husband is not a positive thinker in general. Picture Eeyore. If the news was bad, I was afraid it would cause a set-back and I want him to enjoy the progress as long as it lasts.

However, he has progressed now to the point where I think I can bring it up to the doctor and ask for a clearer opinion. This ortho recognized the CRPS right away but sent us to a pain management doctor straight out of residency. We liked him and he was well-meaning but he had no clue how to treat CRPS so we have been on our own for the last three months or so. Except for the gabapentin and PT, all of the treatments we have tried are things I have found on the internet.

We are very aware that CRPS can not be cured. I have prayed desperately for remission ever since the diagnosis but only recently realized that we don't know what that looks like, if it can be "partial" or if symptoms do appear to go away in more advanced stages and that we're going along day by day thinking he's improving when he's really getting worse!
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