Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-01-2010, 08:36 AM #9
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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I am so sorry about your arms, and the bone crushing pain. Ughh. As a fellow RSDer, I know the pain of which you speak...Mine is mostly in my head, but started in my right shoulder from repeat right rotator cuff repair surgeries.

As for HBOT - How did you get to where that was your treatment of choice? Did you try a round of lidocaine or ketamine first? And does your insurance company cover it? Are your ears OK? One of the members of our support group here in RI tried HBOT and had a lot of trouble with her ears, and still has difficulty hearing on one side from HBOT. Just curious... I haven't tried it yet. I've been sick for 3 and half years, and will be going for outpatient low dose ketamine in NJ in a few weeks. It's taken me months and months to get it, the process was very long and time consuming and - as far as insurance goes - still not done.

Glad to see you back. Thanks for your reply.

XOXOX Sandy

Quote:
Originally Posted by DianaA View Post
Hi Sandy! How are you doing? Thank you...yes things are starting to settle down.
My arms are very painful. I have the bone crushing pain and the burn. I am covered with a deep red mottled upper body and arms. I hope I can get some oxygen soon and get some relief.
I hope you are doing ok, please let me know. Whats new and happening for you? I hope you are feeling well.
Great to see your still here!
Blessings..di
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