Hi Wendy,

I am sorry for your pain, we also live in Florida, close to the Hyperbaric treatments. I have a 16 year old daughter with RSD. We have discussed having the treatment, but have never tried them. What part of florida are your from? We live in Tampa.

hi Sandy, I live in Palm Harbor 5 minutes from a Dr. that does the HBOT, but my current Dr.'s have never mentioned this treatment to me. A couple of people have told me I might be too advanced for this. I was diagnosed in 1986 have had surgeries,blocks,sympathectomies, been to Philly 2 times to see Dr. Schwartzman, and now all my Dr.'s tell me I am palliative care only. I am so sorry that your 16 year old daughter has this awful disease. How long has she had it? what treatments have you all tried? Having this disease is bad enough, but to have a young girl like your daughter have it, thats just not right! How on earth do you handle it, seeing your child with this stuff? I hope you are taking care of your self, as your daughter will need her mother to help her deal with this. Hope to hear from you. your new friend Wendy

I think after like 10 treatments if you have not had any relief or benefit the treatment stops. I could be off on how many but it is not the full amount. There is a gentleman who bloged about his experience. The reason it caught my eye is cause he had rsd in his eyes and I may have it in mine. I think he benefited to a point but still has rsd pain. I could be off a little.

I would talk to DianaA about HBOT info.....


i bought 2 books from amazon that detail how hbot works.


i looked into doing hbot but was too ill to travel but if i get better i would goto canada because its the cheapest in north america. normally you do 40 dives for a trial. 2 dives a day, 20 days in row or some places only do it monday thre friday. atm or pressure makes a big difference from what i have been told by several people. most have told me that it would be much better to goto chambers that can dive deeper like the 2.0atm or bigger. the cheaper 1.3 and 1.6atm chambers sometimes dont do a thing for crps but there is only one way to find out and that is to try it. generaly the deeper the dive the more it costs because the dive takes longer and the chamber costs way more.

the smaller chambers like the 1.3 to 1.6atm look like an enclosed tanning bed or a blown up sleeping bag with a window to see just the face.

Hi All,
I would like to share my HBOT experience. I had a total of 50 sessions of HBOT on two occasions (30x and 20x). My first 30x took place a few months after the onset of RSD. I had very good relief but not remission. The second 20x took place around 2 years after the onset of RSD. I had little relief. I don't know why. Perhaps the sooner the better result. In retrospect, i should not break the treatment. My insurance did not cover the cost. It was $240 per session. I had an installment plan. I paid around $3000. The clinic wrote off the balance after i applied for financial aid. Therefore, ask to see whether or not they offer financial assistance.
Take care,

Here is the blog of the guy who wrote about his experience. He is full body and got good relief. Don't know what the long-term results have been.

http://painisafourletterword.blogspo...&max-results=7