Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-02-2010, 04:09 PM #1
keep smilin keep smilin is offline
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Originally Posted by Wilbyfree View Post
Hi Pete, this scares the living daylight out of me. So my question is, does it actually have an effect on the internal organs or is the main symptom pain. My concern is I was diagnosed with Causalgia, Celiac Disease and Fibromyalgia all within about a six month period. The Causalgia is in my right foot and leg and rsd in left foot. I asked my doc if the rsd could spread, she said no. It has been six years of the initial diagosis, but I believe it started immediately after the fractures and surgeries in my feet in 2001. Thanks for any feedback.

Jeanie
Jeanie~

My friend I can answer this one... yes..pain is the hall mark of the internal organ but it DOES have a negative effect on them as well..ie..stomach could stop digesting food..bladder start stop and lack of power to unrinate..on and on...GI constipation or diarrea.. I ma sorry this does sound aweful my freind..My Pa. trip did help me understand these questions and answers...

Let me know if I can help more...

love, kathy
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babs74 (04-02-2010), Wilbyfree (04-04-2010)
Old 04-02-2010, 08:14 PM #2
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Originally Posted by keep smilin View Post
Jeanie~

My friend I can answer this one... yes..pain is the hall mark of the internal organ but it DOES have a negative effect on them as well..ie..stomach could stop digesting food..bladder start stop and lack of power to unrinate..on and on...GI constipation or diarrea.. I ma sorry this does sound aweful my freind..My Pa. trip did help me understand these questions and answers...

Let me know if I can help more...

love, kathy
Hi KS, thanks for your reply. It all just gets overwhelming and so confusing. Of course...my theory of denial doesn't help (what you don't know won't hurt you), if there is internal organ failure or damage and I could be preventing some of this I probably should get a bit more educated. As far as the pain, nothing would change there, I take very small doses of medication, but I am not willing to climb up the corporate ladder in the pharmacutical company. As long as I know I am not doing any damage or it is something I have no control over, I will just stay in denial mode. LOL Thanks...you are so kind. Wishing you and all a pain free day.

Jeanie
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Old 04-02-2010, 11:34 PM #3
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so chances are it really is traveling down my back without going down my right arm then.. my neuro wants to test me for fibro, she said that crps dont spread therefore the name regional. and it really made me mad when she said that.. I know my back is on fire, i can feel it burning. It hurts.. So she cant tell me it doesnt spread. I just needed clarification on which one i could possibly have.. So i appreciate all the responses.. Keep smiling any info you could pass along would be greatly appreciated since i have a deep misunderstanding of what is going on inside of my body and cant get any answers except on here at this moment.. Was trying to get into this dr that does ketamine and they sent my file to a dr that wants to take me off pain meds,(which i dont have) and put in scs. I really dont want that..
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