Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-01-2010, 03:38 PM #1
abrown176 abrown176 is offline
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Default Can't Pee

Hi Im 3 days out from my surgery now to move my SCS battery. It has been almost a year ago that I had a 4 day epidural drip for my RSD. After that I had some trouble peeing. It feels as if your pushing out a bowel movement to get some pee out. Since surgery it has became worse. I was taken to the ER last night because I couldn't go. They told me I was dehydrated and had very little in my bladder. They said they can't explain why its been off and on for a year. Just wondering if any one has had this same thing happen or if you have had a epidural drip for your RSD. They ER doc told me he would refer me to a urologist if I wanted to go. Any thoughts on this. Please all thoughts are greatly appreciated. Thanks!!
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Old 04-01-2010, 03:45 PM #2
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Originally Posted by abrown176 View Post
Hi Im 3 days out from my surgery now to move my SCS battery. It has been almost a year ago that I had a 4 day epidural drip for my RSD. After that I had some trouble peeing. It feels as if your pushing out a bowel movement to get some pee out. Since surgery it has became worse. I was taken to the ER last night because I couldn't go. They told me I was dehydrated and had very little in my bladder. They said they can't explain why its been off and on for a year. Just wondering if any one has had this same thing happen or if you have had a epidural drip for your RSD. They ER doc told me he would refer me to a urologist if I wanted to go. Any thoughts on this. Please all thoughts are greatly appreciated. Thanks!!
abrown176..

I am sorry to hear you are having this issue..I just have to ask have you thought that possibly your RSD has traveled to your bladder?? This is possible I understand and actually I have been alerted to watch for this... Do you currently have RSD internal at this time???

I am sorry....Hugz, Kathy
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Old 04-01-2010, 04:16 PM #3
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Abrown176
It probually isnt the same thing,,but,,rsd has invaded my private area penile,retum,perinuem,scrotum,,,When it first happened,,It felt like I had prostatitis,,pain in the perineum area[between the rectum and scrotum]. then it spread every where in a few weeks,,it started out as a rash on my inner thiegh..but the corralation is,,I had trouble pee'ing,,not emptying all the way,,like a prostate issue,,,but you havent mentioned pain in your post,,,but you may not have pain with this issue,,just the hard to pee problem,,I did read where it can have a dysfunction of ejactulation and peeing problems,,it[rsd] can affect the prostate as well...this I personally know first hand,,,,either way ,,compare notes,,,let hope its the drip medicine that has you numbed up,,that happens after surgery alot...keep us posted,,If you get rsd down there,,you will know it,,and eventually see it,,,,,lets pray,,your just still numb.......
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Old 04-01-2010, 06:55 PM #4
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Dear Abrown76,
Well, to let you know that not being able to pee is a bit normal for people like us with RSD. I saw Dr S a few months ago and told him I have the same problem off and on for about 6-8 months or so and he said the lady before me had the same problem. The RSD is probably in the bladder and that is why it is stopping the urination. However, you should go to the ER if you can't go for a few hours because of dehydration as already happened to you. In my first year of RSD my bladder stopped completely and I did not go for over 12 hours and had to call an ambulance cause I could not move from severe pain and no urination. It was real bad. When it happens now I try to relax and either read, turn the water on next to me and try to make it warm and keep my hand in it, or get up and try again later. I hate it too cause you really feel like you have to go especially in the morning but nothing comes out and you don't want to strain yourself and cause other problems. Well, try drinking cranberry juice, and I know beer does wonders for kidneys too. Best of luck.
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Old 04-01-2010, 07:15 PM #5
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Thanks everyone! I was not even thinking that the RSD could move to your bladder. Today I have been able to get some out a little better. The ER doc wants me to see a urolgist to get there opinion on the matter. I guess I'll make an appointment and go. I'll make sure to tell them I have RSD leg and foot. Last year I was having severe pain in the Galbladder area. I went for every test to check the galbladder out and knowone could find any thing. I still get those spine tingling pains in that area. I gave up on it and just take my pain meds when it happens now. I guess that too could be RSD. I need to talk to my Doc about these problems and see if he thinks they can be all related. Thanks for all the great information and thoughts.
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Old 04-01-2010, 07:54 PM #6
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I do not have RSD but my daughter does however I have had several bladder surgeries due to complications of child birth. One very important thing for you to do is to keep up with the amount of liquids you are taking in verses the amount you are putting out. This will be one of the first things that a urologist will ask you. If you are dehdrated it may just be an intake problem.


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Originally Posted by abrown176 View Post
Hi Im 3 days out from my surgery now to move my SCS battery. It has been almost a year ago that I had a 4 day epidural drip for my RSD. After that I had some trouble peeing. It feels as if your pushing out a bowel movement to get some pee out. Since surgery it has became worse. I was taken to the ER last night because I couldn't go. They told me I was dehydrated and had very little in my bladder. They said they can't explain why its been off and on for a year. Just wondering if any one has had this same thing happen or if you have had a epidural drip for your RSD. They ER doc told me he would refer me to a urologist if I wanted to go. Any thoughts on this. Please all thoughts are greatly appreciated. Thanks!!
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Old 04-01-2010, 10:41 PM #7
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Kathy d
You just joggled my brain,,,Heat,,Ive noticed when i lay down to go to sleep and I place the heating pad in my groin area,,then sometimes i wake up alot to pee alot more and a steady steam,,It probually is the heating pad over the bladder,,When I dont use a heating pad,,I still get up to go alot,but only small amounts come out,,but with the heating pad on medium on my bladder[right above the pubic line] I notice I go more frequent,but I pass alot more urine with a more powerfull stream......And as for the upper quadrant area pain Abrown,, [near the gallbladder ,liver area,] I have that as well,,I think its the rsd too,,I ve spoken to a couple of people on this board with the exact pain in the exact area,,,,,,but this may not be your case,,it could very well be something else,,but its always good to compare notes,,,
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Old 04-02-2010, 12:11 AM #8
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i dont pee alot. and i dont have internal rsd. just in left arm and shoulders so far.. didnt think it was related..maybe it is.. who knows at this point.started drinking water all the time and it seems to have helped a little.. maybe you could try that as well.. water and beer always goes right through ya..
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Old 04-02-2010, 08:21 PM #9
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Quote:
Originally Posted by abrown176 View Post
Hi Im 3 days out from my surgery now to move my SCS battery. It has been almost a year ago that I had a 4 day epidural drip for my RSD. After that I had some trouble peeing. It feels as if your pushing out a bowel movement to get some pee out. Since surgery it has became worse. I was taken to the ER last night because I couldn't go. They told me I was dehydrated and had very little in my bladder. They said they can't explain why its been off and on for a year. Just wondering if any one has had this same thing happen or if you have had a epidural drip for your RSD. They ER doc told me he would refer me to a urologist if I wanted to go. Any thoughts on this. Please all thoughts are greatly appreciated. Thanks!!
Hi Abrown I am sorry to hear that you are experiencing this. Just my opinion, but I would be questioning the SCS and the area they moved it to. Sometimes bladder problems go hand and hand with this device and it seems strange that this just started after your surgery. Just a thought. Hope things get better for you.

Jeanie
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Old 04-02-2010, 11:33 PM #10
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I've been having difficulty urinating since the day this started. It ebbs and flows but never completely goes away. I take avodart for it but really don't believe it's helping.
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