Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-15-2010, 11:09 PM #10
SandyS SandyS is offline
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Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
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Hi Kim,

It was easy to get here, we live on an Island, which is by downtown Tampa, and we have a private pharmacy...they had it in stock which I was surprised. But, it hasn't helped the pain for her. Let's see, our copay was $60.00 for 60 pills. Unbelievable...Lindsay has been going to PT three days per week. We found a wonderful PT lady in St. Petersburg, right over the bridge, she also has RSD. She is great with Lindsay, doesn't push her but she is able to manipulate her shoulders and the other day, was able to get rid of her migraine. We also found a PT for the physical part that is close to home. He is very well versed with RSD. She is doing pretty well. Still in a lot of pain, but seems to be having more of a life. I hope things get better for you too.

Sandy
Quote:
Originally Posted by kim ames View Post
Hi Sandy.

I have been taking Nucyenta for four months now. My PM prescribed it for pain. It a class 2 narcotic and is very similar to Morphine. It comes in several dosages. Mine is 50mg three ties a day. I live in MD and have had a horrible time finding a pharmacy that carries it. My hometown pharm. took three months to finally get it for me. He said it is very new and outragesly (sp?) expensive, so not too many prescribe it. I had to pay for it with my primary insurance (not w/c) and my copay was $40.00 for 90 pills! Well worth it for me, as I cannot tolerate narcotics, but I am not constantly vomiting with this. Hope it works for her.
Kim
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