Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-25-2007, 02:21 AM #11
artist
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OMG Jo, what a list!

Have I got DOORS (walking into them?) and what is Drash? Friend of mine has a walker with a bash in the side - could that be Dandy Walker Malformation? Or Dentin Dysplasia? - Only kidding, guys, great list. I've looked up as many Ds as I could find, also V and T, Th...no dice.

Moonstar (beautiful name) - Yes, just ask her how to spell it - it can't be a name many people know (whatever it could be), or we'd have got it by now. Quite natural for you to just ask about the spelling - and I've looked up stuff on the net for friends and have had to ask how to spell whatever it was. Medical stuff is different, and many names are very similar...it shows you're a good friend if you're interested enough to want to know more.

And a friend of mine looked up RSD out of interest/concern - I can't tell you how pleased I was that she'd felt like doing that.
all the best!

Last edited by artist; 01-25-2007 at 03:10 AM. Reason: stuff again...
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Old 01-25-2007, 09:20 PM #12
moonstar moonstar is offline
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moonstar moonstar is offline
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Heart all my thanks..

and love for each and everyone of you who helped me to figure this out....what a bunch of beautiful people you all are..going out of your way to help me to help someone else... i am so overwhelmed... i will be checking out the web site..yes that does seem to be one of her problems... and i am trying my best to help...just like you help me..it makes me feel so much better about myself to be able to help others..takes my mind off of me for a short time..
i have the DOORS thingy too they seem to just appear right in front of me all the time
i am slip-slidding on the bridge still...but it seems i have on my slippers with the non-skiddy things on them soooo i will get thru another day..mostly just to be around for others who need me....
thank-you all for being here..............
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Old 01-25-2007, 09:32 PM #13
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Dear Moonstar

it really sounds like guillan barrie - when I was on the rehab ward I knew someone that had had it - literally got this virus like flu and within 24 hours had tro be on a respirator, lost all the use of his arms and legs etc. It just causes very sudden muscle weakness and nerve issues.

I don't think it is painful - but it is definetly VERY scary.

Rxxxxx
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