I sure can identify with the anger that started this post, but most of my anger has been with doctors more interested in their best interest than our pain. How could we trust the tv idiots to ever get it right when the doctors cant even seem to get on the same page.

After 10 years the anger has turned to mostly frustration, but it doesnt take much doctor stupidity to get the anger worked up LOL!

Hey Jim, I thought I would share with you and anyone else that might be facing an ssdi/ssi hearing something that I think swayed the judge in my favor. This wasnt planned but happened in the moment, the judge after hearing mt case asked if there was anyone with me that might be able to testify in my behalf. I hadnt brought anyone, but my son had brought me to the court.

My attorney went out and asked him if he would mind if the jugde asked him some questions, and he said sure. The judge asked him if I was different now that I had RSD, and what were those differences. Now it was very hard to hear from someone elses point of view how my being disabled affected the people around me, but it was the story he told of how we used to camp, go to ballgames, and how I played with the grandkids before my disability, and how I dont do any of those things anymore.

Then he added he doesnt even like to bother me now because I never come out of my bedroom, and he could tell that I was not into visiting like I used to. There were other bits of info that he shared as they asked him the questions, but I do believe with all my heart that this was the swing factor in my approval.

So if you have any friends or family that has been affected by your wifes disability. You might ask your attorney if that would help her case.

Hope everyones pain is in check here in 2010

Allen..

We my friend are sure victums of the system..I think that was what had my dander up when I began this post..I felt that once again..we could have used recognition even if it was not planed nor an hour worth of jabber..just a mere mention for RSD'ers..who are great people and who have loving hearts and take care of eachother..we just have trouble seeing ourselves thru each day cuz we can't see past our pain...I didn't mean to hurt anyones feelings or ruffle feathers.. I think we have more hope closing our eyes at the end of eachday and hoping we will wake up better all on our own and that would be a fluke... I have more hope in that than anything..

Have a good night, Kathy

Kath.....if it makes you feel any better, I'm sure Larry King will be in severe pain himself as he makes out those child support and alimony checks

This issue didn't bother me much because I have never, and doubt I will ever, watch his show. If it was Oprah or Dr Phil which I sometimes like to watch, then I'd have more to say on it !

TShadow on the TOS forum has done letter writing campaigns to Oprah and Dr Phil to try to get them to do a story on TOS and RSD, really, for all of us living with CP.

I agree with other posters that overwhelming anger can worsen our sx's.

I disagree with them that it's not worth it for you to vent/start this thread. For one thing....venting is good ! If you are feeling it, better to let out anger than keep it in ! I for one am impressed that you actively did something about it by writing to the show. Good for you ! There is a difference between moaning about something that you can't change and complaining about something WHILE TRYING TO CHANGE IT which you did by writing in and trying to get others to do too.

You go girl !

Hey Finz...

I like you..thank you for your words... Notarity is only part if, I realize the attention for support and help goes along with that..and yes, stress is our enemy.. see picking our battles is huge in order not to allow ourselves more pain..this guy is not worth it and never was..as they say, every dog has their day.. he'll find what the really meaning of support is...it only took him 8 trys..so be sure to put those commas in the right place there, Larry.. In the mean time, we are all our own advocates. It is a full time job managing our RSD lives .. I am so glad I have you and countless others in my life..I know it would be a lost, unknowledgeable journey otherwise...

Have a pleasant day, Finz...

Kath

Did anyone notice my post about Larry to remarry? I posted it before the news hit the air about them getting a divorce.

allentgamer, thanks for the advice about testifying because that is what her lawyer wants to do. I will testify on her behalf. As far as changes from then till now? Everything has changed and frustration abounds every single day fighting a system that doesn't mesh well with those who are chronic, a nation that only thinks in terms of money and labour even when policies were paid and both myself and wife's paid labour equals 65 years. All our savings are now gone. If she is again turned down, we will have to sell our home.

Jim - I'm really, really sorry. Sometimes life is just not fair....XOXOX Sandy

You are correct. In my 52 years I've seen my share. I was never one to sue, I and my wife are hard working folks. I've paid taxes non stop sinse 1971, sinse I was 14 years old. Even when Suzy broke her arm on my sister's broken up padio by tripping over severly broken padio block, we did not sue her insurance. It was this brake that started it all. But one thing I will never tolerate is her rejection from what she paid for and is entitled to and that is her SSDI and medicare. I will never stop, never.

Jim I am sorry too for that added struggle.
Did anyone notice this girl is on the aol home page today?

Please hang in there. Hopefully his will just be the darkness before the dawn. I too have fought with but my daughter, who a social worker with lots of disability experience was there to help me. Of course I was denied the first time, and we appealed. When I went to the second hearing, the board seemed to have the attitude of why did you wait so long? and I could have just screamed!! The good news is that once your wife is approved, everything is retro-active back to the time you first filed. In the meantime, maybe possible help can be found from family services or your church family. Please remember, people who care can not help unless they know that there is a need. Lisa

Jim, You are your wife's advocate, as my husband is mine. He has fought the insurance company, the doctors and even family members. I could not have made it through these last eight years (mainly the last two is when I really went down). What were the legal basis of the denial? almost everyone gets denied the first time. Then you appeal and go before the ALJ. Have you gone there yet? If not, this is your time to witness on behalf of your wife's debilitating illness. You know your wife better than anyone does. KS, hit it right on the nose when she said dealing with the pain is a full time job for both of you. My husband gets up everyday and goes to work, but before he leaves the house, he sets me up for the day. He gets home and the same thing, he has to help me finish the tasks that I attempted to do but just could not finish. He is really working two jobs and it is just not fair. May I add, prior to this illness, my husband use to get mad because he would get up in the morning and go for a bathroom run and I would make the bed. Now, he could go to lunch and that bed just might not get made. I am an optimistic person, I tell myself every morning when I wake up my glass is half full. But the reality is, by 9 am, no matter what, my glass is empty, no matter how I look at it, it is empty. You need this greatly now in your life and God knows that, stick to the facts of what your wife is capable of on a daily basis and the dependance she has on you. You truly are a wonderful husband and caretaker, I know I have one just like you. Take care

Jeanie